Gullet (oesophagus) cancer

A support group for anyone affected by gullet cancer (also known as oesophageal cancer) to come together, share experiences and ask questions.

Stage 4 Oesophagus Cancer

KGH
Posted by

Hi, new to the group, looking for any advice really. Mum (age 68)  has stage 4 Oesophagus cancer, diagnosed July 2017. After some treatment early on, the cancer stabilised and we had a good 9 months of normality. Then at Christmas the swallowing became difficult and got progressively worse until she had a stent fitted 3 weeks ago.  We had hoped he stent would really help her, and it has helped with her swallowing (although getting her to eat is hard work, shes not hungry and isn't interested) but she has been in constant pain ever since - her back and her chest mainly. She is taking pain relief which she says does help but I can see how much she is struggling. She has another CT scan on Tuesday, we tried to bring the appointment forward for this but the best they could offer was being on a list for a cancellation but heard nothing since about that.  Has anybody else experienced such pain after the stent procedure? Is it normal to be having such long waits between scans and appointments at this stage? The cancer is in two lymph nodes as well.

Thank you,

K

latchbrook
Posted by

Hi and welcome to the online community

I'm sorry to hear the difficulties your mum is experiencing. I can't answer your questions but I noticed that your post had gone unanswered. By replying to you it will bump your post back to the top of the page where hopefully someone with the right experience will see it and be able to reply.

You could also post your question in ask a nurse and one of the specialist cancer nurses will try to respond within 2 working days.

Sending you a ((hug))

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

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Shanney70
Posted by

Hi K

yes my husband had quite a lot of pain when he first had his stent put in. He T4 N3 M1 he was nervous to eat but gradually he went from soft puréed food to normal food within about six weeks. He is also diabetic so had to be careful what he ate. But he does live ensures so has a few of those a day. He had chest pain and back pain initially and had pain killers but it did ease off 

wish your mum all the best tiaramasu and trifle were godsends for my husband. He had his fitted in September last year now eats everything but in small quantities 

cath

Cath 
Hayley1386
Posted by

Hi Cath

can I ask what kind of treatment your husband is currently having? My dad was diagnosed in May last year T3N2M0. He had flot 5 chemo which didn’t work and then had radiotherapy and chemo combined which finished at Christmas. That treatment was very successful on the tumour in the oesophagus (it’s completely gone now) however the PET scan showed that there are now a few new nodes with cancer and two small bits of cancer in his lung, they are now saying dad will have palliative chemo.

im just wondering what types of treatment others are having to try and get an idea of what options are out there. Your feedback would be greatly appreciated.

many thanks Hayley x 

KGH
Posted by

Hi Cath

Thank you for coming back to me, it sounds like things might get better for mum then.  Another issue she's suffering with is wind, she is always belching and it's quite forceful - it sounds really painful.  I don't suppose your husband suffered with this too?  

I'm glad your husband is eating better now, best wishes to you both. 

Kate

Shanney70
Posted by

Hi 

he has had 6 sessions since October of chemo and just started Herceptin and due more every 3 weeks. He has additional problems being diabetic and is being treated for gangrene in a toe so had to come off the chemo until toe is sorted but Herceptin can continue

his side effects have been ok recently, but did have hand foot syndrome that put him back a couple of weeks and chemo had to stop. He has been on Cisplatin and capecitabine. 

Awaiting ct scan beginning of May fingers are crossed 

cath 

Cath