Gullet (oesophagus) cancer

A support group for anyone affected by gullet cancer (also known as oesophageal cancer) to come together, share experiences and ask questions.

Just been diagnosed

Rhodie54
Posted by

Hi, I was diagnosed with Oesophageal Cancer last Thursday 11th April. I am still trying to get my head round it, likewise my wife. I am 65 years old in June, so still relatively young. While the specialist was explaining this to me, my wife asked how serious it was, and the specialist said very serious. I have to go for a ct scan tomorrow to see how bad it is, and if they can operate or not. My head is spinning with the speed at which things are happening now.

Garyb
Posted by

Hi Rhodie,

Sorry to see you’ve ended up here. Everyone in this group will remember the first time they heard the news, it’s the worst part and waiting to find out what stage your at is an awful time. You will likely have a number of tests before they see the full picture including CT, PET scan, endoscopes and potentially some exploratory surgery. 

All I can offer at this time as I’m sure the many members of this group is that we’re all here for you with as much help and experience as we can offer. 

The key piece of advice I wish I had followed was simply to stay off the google doctor, it won’t help. It’s beatable and people beat this all the time and you could be 1 of them. I was told I had a 7cm tumour that was approximately 2 years old, I am now in remission. 

Best Regards

Nothing worthwhile comes easy.
Rhodie54
Posted by

Hi Garyb,

thanks for your reply. Yes it is a worrying time. I had my scan yesterday so now the waiting time starts to get the results. Until then I try to think the best, but obviously the worst case scenario keeps popping into my head. I am a fighter and I am staying positive and will fight this with everything I have got.

My family has a history of bowel cancer, and  both my parents and various uncles and aunts have all passed away with this condition. My brother was diagnosed in March 2018 and was told to inform all members of the family to get checked out, and put me on a high risk due to the generics and to be fast tracked. My brother lives in Nottingham and his consultant sent me a letter for my GP to put me on a fast track for a colonoscopy. I was seen by a cancer unit in June, and have been chasing this up since then. A month ago I finally got an appointment with a consultant which was yesterday afternoon. I am sorry to say I had a few words with him, saying that this has taken over a year to get this far, and I am supposed to be fast tracked. I told him it was too late as I have been diagnosed with oesophageal cancer. I realise this is completely different to bowel cancer, but the distress this has now caused for both my wife and myself is hard to take. In the consultant defence he apologised and agreed that a year is unacceptable wait time for a fast track, and he jugged his diary for me to have the colonoscopy tomorrow, so now will have two things to worry about. He did say he would get the results back to me asap, so fingers crossed.

Garyb
Posted by

Good morning,

my surgeon said to me that the patients with a positive outlook tend to fair better, anecdotally at least.

interesting about the bowel cancer, my father and grandmother both had bowel cancer so there would seem to be a link. I had no idea there was even any type of preventative screening until recently and my brother has been tested for something called lynch syndrome.

Good luck with the results, things tend to move quickly from there. 

Nothing worthwhile comes easy.