My husband went for an endoscopy last week. He had had problem swallowing for about a month.
They took 8 biopsies and we were told straight away it was an established cancer which was about 30cm long! We were both shocked and cried
CT scan was on Friday and its now the waiting game for the appointment to be told what’s what. But to be fair so far it’s moved quick.
Meal times are stressful, we have adapted meals so it’s things like rice and mince that will go down easily but evenings he get so anxious about eating it makes things worse.
I am trying to the positive and strong one for him but inside I am falling apart. He lost his mum and sister to something similar and seems to have resigned himself to the fact he is going to die and it’s spread as his stomach as that’s tight and solid.
I keep saying ‘our story isn’t over yet’ which actually makes me well up each time I say that.
we have an allotment which at least keeps out mind occupied for a little while, but the sense of dread always returns.
Being in this between phase is not nice. Any words of advice or what to expect next would be gratefully received.
That’s good that they have sent the samples of for further testing, that was done with myself, they said mine didn’t look the norm and diagnosed me as Nec/Net Neuroendocrine, after further tests and two rounds of treatment I was re-diagnosed. I felt quite lonely at first as a Net/Nec is rare in the esophagus and I was on different treatment to others on here.
I have four grown children and I have gone through my symptoms with them, hopefully one day it will come down to a blood test for checking for cancers.
Good luck to your husband for the start of treatment, it is a tough journey, it sounds like he is getting the best, There is the OPA website that has a forum and there may be a Macmillan centre at the hospital or a Maggie’s.
Best wishes
Jennie 
