We understand that people with cancer are worried about coronavirus.
Here is the
We will update it regularly.
A place for people affected by brain tumours or brain cancer to support one another...
Over the last week I have shown some signs that something wasn’t right with my head and they were totally different to the signs before my first two removals of GBM tumours
I have just finished my 18th cycle of increased TMZ and then I started to get pressure headaches, dizziness, and more tiredness and nausea than what I would get on a chemo week.
I live in Australia and this is how things went down today.
My wife rang my General Physician this morning and told her what was going on, they then got onto my neurosurgeon and discussed the situation and ordered an emergency MRI. I had the MRI done at 12pm and then saw my neurosurgeon an hour later with the results.
The bad news is a new tumour has developed in my temporal lobe (the first two were in the partial lobe). The good news is it can be removed and I am booked in to have it done on the 22nd of Feb unless I have any seizures before hand.
My neurosurgeon rang the radiotherapy oncologist who I had with the first radiotherapy to see if it was locally targeted. The answer was yes so it looks like I will go through radiotherapy/chemotherapy again.
It has now been 20 months since diagnosis and as long as it can be operated on I will keep fighting it.
Get as much as you can out of life, as you don’t know what is around the corner
I am sorry to here this . All the best with the op . Best wishes. Heather
Sorry to hear this Colin, but it all sounds positive. Keep fighting. All the very best to you.
So sorry to hear this Colin, I so appreciate your posts on this forum. Wishing you all the best - and keep posting please.
Mother of a 24 year old son with GBM
Thank you Heather
After the op I will post how it went.
Thank you Rach,
Thats it just keep fighting.
Thank you Bluees.
Yes I will keep posting and will let you know how the op goes.
MIchael really wanted to do Hyperthermia treatment but we did not get tge time . Thouggt I would just mention it .
so sorry to hear this. Wishing you all the best with the op. You have been so encouraging and brave throughout.
that courage will see you through this too.
good luck with your op
Thank you for mentioning it Heather, I will mention it to my chemo oncologist next time I see her.
Thank you Sheila,
It’s the nature of the beast that it was always going to come back so I have been mentally prepared for it.
thank you for the encouraging words and I will do a post after the op.
Hi Colin, thinking about you as you go through the op and post op treatment. Sounds like you are a resourceful man and your determination to fight has to be admired. Hope to read some more messages from you when you are ready.
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: