Glioblastoma multiforme brain tumour

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The beast is back

Colin33
Posted by

Hello all,

Over the last week I have shown some signs that something wasn’t right with my head and they were totally different to the signs before my first two removals of GBM tumours

I have just finished my 18th cycle of increased TMZ and then I started to get pressure headaches, dizziness, and more tiredness and nausea than what I would get on a chemo week.

I live in Australia and this is how things went down today.

My wife rang my General Physician this morning and told her what was going on, they then got onto my neurosurgeon and discussed the situation and ordered an emergency MRI. I had the MRI done at 12pm and then saw my neurosurgeon an hour later with the results.

The bad news is a new tumour has developed in my temporal lobe (the first two were in the partial lobe). The good news is it can be removed and I am booked in to have it done on the 22nd of Feb unless I have any seizures before hand. 

My neurosurgeon rang the radiotherapy oncologist who I had with the first radiotherapy to see if it was locally targeted. The answer was yes so it looks like I will go through radiotherapy/chemotherapy again.

It has now been 20 months since diagnosis and as long as it can be operated on I will keep fighting it.

take care

Colin

Get as much as you can out of life, as you don’t know what is around the corner 

Heathsad
Posted by

Hello Colin

I am sorry to here this . All the best with the op . Best wishes. Heather

Rach96
Posted by

Sorry to hear this Colin, but it all sounds positive. Keep fighting.                                          All the very best to you. 

Bluees
Posted by

So sorry to hear this Colin, I so appreciate your posts on this forum.  Wishing you all the best - and keep posting please.

Mother of a 23 year old son with GBM

Colin33
Posted by

Thank you Heather

After the op I will post how it went.

take care 

Colin 

Get as much as you can out of life, as you don’t know what is around the corner 

Colin33
Posted by

Thank you Rach,

Thats it just keep fighting.

take care 

Colin 

Get as much as you can out of life, as you don’t know what is around the corner 

Colin33
Posted by

Thank you Bluees.

Yes I will keep posting and will let you know how the op goes.

take care

Colin

Get as much as you can out of life, as you don’t know what is around the corner 

Heathsad
Posted by

Hi again 

MIchael really wanted to do Hyperthermia treatment but we did not get tge time . Thouggt I would just mention it .

Best wishes

Heather 

Rosvar63
Posted by

Hi colin

so sorry to hear this. Wishing you all the best with the op. You have been so encouraging and brave throughout.

that courage will see you through this too.

take care

sheila xx

Sheila.

1983
Posted by

Keep fighting

good luck with your op 

Colin33
Posted by

Thank you for mentioning it Heather, I will mention it to my chemo oncologist next time I see her.

Colin

Get as much as you can out of life, as you don’t know what is around the corner 

Colin33
Posted by

Thank you Sheila,

It’s the nature of the beast that it was always going to come back so I have been mentally prepared for it.

thank you for the encouraging words and I will do a post after the op.

Colin 

Get as much as you can out of life, as you don’t know what is around the corner 

Colin33
Posted by

Thanks 1983

Get as much as you can out of life, as you don’t know what is around the corner 

Svety
Posted by

Hi Colin, thinking about you as you go through the op and post op treatment. Sounds like you are a resourceful man and your determination to fight has to be admired. Hope to read some more messages from you when you are ready. 

Best wishes

Svety B