Glioblastoma multiforme brain tumour

Glioblastoma multiforme (GBM) is a type of brain tumour. If you're suffering from glioblastoma multiforme, or know someone who is, join this support group.

My gmb journey

Smallp02
Posted by

Thanks Colin.. 

Its down to 68... needs to be 150!!@

What else do you eat apart from avocado?

I keep asking 're diet and am told won't make any difference and nothing I can do.. but I am willing to try anything xx

Paula x

Colin33
Posted by

I also eat lots of foods rich in Omega 3 fatty acids such as tuna, salmon and avocados

lots of leafy greens such as spinach etc. and also drink green tea with papaya at least twice a day 

also exercise a little bit(not enough), but it does tire me out.

Colin

Get as much as you can out of life, as you don’t know what is around the corner 

Colin33
Posted by

Sorry forgot to say. Holly crap with your platelet levels

My oncologist is happy above 100 and will take me off chemo if they drop below.

like I said before mine was dropping and got to 108 before shooting up 6 months ago and the only thing I changed was my diet

Get as much as you can out of life, as you don’t know what is around the corner 

Barriex
Posted by

Hi guys quick update 6 month cycle completed went well tolerated it well had 2 clear MRI now no significance waiting for next MRI end of this month.

Struggling with fatigue  at the min but I'm fighting the beast

Smallp02
Posted by

Hi guys 

I am so sorry not posted in here for a while but glad to hear you are both doing ok....for some reason I did not get any otificuatuons of updates but seem to  or be doing....

I am now in my 2nd month chemo free after having the 6 months of 5 days in 23 off  following my MRI which showed that the tumour had not increased...

Amazing ne2s!!

Plan is to reduce my steroids and a repeat MEI in 3 months time.. so now trying to enjoy  ring hospital free for a while... well, Part from.all..y other ongoing issues, including recurrent shingles infection and my eyes continue to remain blurry!!

On another positive however I have ethos weekend managed The Shard which is on my bucket list... hurrah!!!!!

Anyway, I do wish you both well and will stay in touch x

Paula x

Colin33
Posted by

Hi Paula,

I am glad to read you are doing as well as you can be. 

For me it’s been interesting, I have just come out of hospital after having a tumour removed from the temporal lobe my neurosurgeon was able to debulk all of the tumour I had completed 20 cycles of chemotherapy but it didn’t come back in the original spot,My wife had seen different signs in me so she rushed me in for an emergency MRI which showed the tumour. We have a plan going forward so I will keep fighting it.

take care 

Colin

Get as much as you can out of life, as you don’t know what is around the corner 

Smallp02
Posted by

Hi Colin,

Sorry to hear you've just been back in... but wishing you well in the road to recovery.. 

Sounds like your wife is in the ball to have  noticed the differences  thank goodness she did!!!

And you bow have a plan.....?? Sounds interesting!

And as for fighting, I am with you in that.. they say we have to remain positive don't they?!  I must admit I've had lots of stresses recently and did get VERY low but I'm determined again now!!

You stay strong...

Best wishes

Paula x

Paula x