Hi all
Just wondering where we are in the journey? My brother had been in hospital almost 6 weeks now.
Tried to get him home but was back in within 24 hours.
He sleeps most of the time, wakes for food and toilet basically or if someone visits.
He can just about walk to toilet but gets very breathless and panicky, otherwise he's in bed, refuses therapy, sitting out etc.
He's now complaining of pain (new) and today vomited. Palliative nurse saying weeks to months. I just don't know.......
Did post before about our attempts to get him home but it failed and he's back in hospital, we're now looking for a nursing home.
Dear Jyo
Thanks for confirming basically what I've been thinking.
My brother sleeps most of the day and has small awake periods, if we visit he can start off well but after about 30 mins gets tired and confused.
He still tries to get out for the toilet but now becomes breathless and panicky.
It's absolutely heartbreaking as you know.
I shall read your story later today.
Lots of love x
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