Affected by NHL? Join this group to share experiences and ask questions to people...
My wife was diagnosed with fnhl low grade six years ago and has been on a wait and watch policy. We are from India and we have been in touch with the team at Stanford regularly on her progress.. we just had a child five months ago and all of a sudden my wife developed pain abdomen and distension for which an ultrasound revealed ascites and increased size of the lymph nodes of the splenic hilum and peripancreatic areas. The Stanford team has advised for a pet CT and a biopsy of the lymph nodes on an urgent basis.. we have been consulting a doctor in India who adviced us to not jump to conclusions and wait.
I am really confused on how to go about things
If there is anyone who could advice us or who has had similar experiences.. please let me know.
So sorry to hear about your wife's illness. It must be very difficult for her, especially with a new baby and far from home and it is hard to know what to do. It sounds like you and your wife need some good information to help choose the next step. It sounds as if she is very uncomfortable and will need to make some decisions now.
I'm just another patient here, but I have tried and tested the advice on the 'Ask an Expert' tab on this Macmillan site. They have specialist nurses available and they really do know their stuff. They have helped me with my concerns since I was first diagnosed. I would recommend calling or emailing them for up to date advice. Here's a link:
I hope you find the information you both need and your wife can find the medical help she needs.
Me in your position would be pushing for the CT and biopsy as a starting point and getting a few reviews of the results.
Mike - Thehighlander
It always seems impossible until its done - Nelson Mandela
Thanks so much Thehighlander.. we r going ahead with the pet CT and biopsy.. will get back with the results
In your position, I would make the same choice myself.
Best to know where it is (PET) and what it is (biopsy) since they would know the best treatment from the two results.
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: