Affected by NHL? Join this group to share experiences and ask questions to people...
if anyone wants to read about chemo brain the is an article in the latest lymphoma action magazine which you can download as a pdf, its a free publication they produce 3 times a year.
Thank you John, Now I am starting to realise why I am taking so long to do certain things or not finish them. Mine all started nearly 5 and a half years ago when I had bowel cancer and the chemo I had then that caused my cardiac arrests. Just prior to being released from hospital I had a psychologist undertake various tests and from that they worked out that I had a bad short term memory, which I still have, yet lets say I do something today, tomorrow I will have forgotten it, but then a couple of weeks later I can remember it. I'm terrible at remembering names, always misplacing things, forget why I've gone upstairs to get something, so its why now I write it all down.
In the end, it's not the years in your life that count. It's the life in your years. Abraham Lincoln
Hi Peter all I can say is snap, especially re remembering names and word searching is a challenge to when talking, anything important I need to remember to do I put in my phone and use that more now as I would just keep forgetting things.
the are a number of research papers around if you want to read more and it was only around 2012 when it was recognised as chemo induced cognitive impairment
I had a CT scan after my 3rd treatment cycle and went to see the Haematology consultant this morning who has confirmed that I am in complete remission.
I am so happy and a bit emotional at the moment.
I still have to complete the 6 cycles of R-Bendamustine, 4th cycle is Monday/Tuesday next week and then I might be put on Rituximab maintenance for 2 years.
Wishing everyone else best wishes for a successful outcome.
Great news Allan
Mike - Thehighlander
It always seems impossible until its done - Nelson Mandela
Thats fantastic news. So glad its going so well for you.
that's great news Allan and will continue to give hope to the others in the group
Fantastic news! And so soon too. You must be thrilled!
Congratulations on your remission, Blocks!
Congratulations Allan, that really is amazing news, to be in remission after 3 cycles is incredible and shows just how good this treatment can be.
here’s to a long and trouble free remission mate.
That is fab news
Hope that the next cycle goes well for you.
Thanks for all for your kind messages, apologies it has taken me some time to respond.
I completed cycle 4 this week and today I am starting to feel close to normal again.
Hi Allan blocks, good that you are making progress and you are not experiencing any real issues. In the early days a lot of folks just expect the journey to be full of challenges but it often turns out not to be the case and let this continue all the way through your treatment.
Just sharing a bit of encouragement. I got my halfway scan results today - 4th treatment with B-R due Tuesday. I was a Grade 4, with lymphomas in my neck and ilial bone in my hip, with local spread into everything around the bone. Bones are harder to treat than soft tissue lumps and take longer to heal and mine was a complete mess on my initial scans. My orthopaedic surgeon was shocked by the scan and I was worried in case the whole thing just crumbled apart.
The nodes in my neck are normal, the tissues around my hip bone are clear. This is great, although my actual hip bone is still a mess. The treatment is working, the lymphoma is responding and I can continue the same course. I know it'll take time, but I feel this is decent progress after just 3 treatments. Side effects are some bruising around the veins they use for the infusions and a bit of tiredness. Trivial!
Keep going, chaps!
Worth a Thehighlander high 5 Cecren
So glad its going well Cecren, hope at the next one you see an improvement in your hip.
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