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so, my maintenance treatment is officially over now after only 3 of the 12 treatments due to bloods not recovering. (Neutrophils)
I now move to 2 GCSF injections each week for the next 8 weeks and then they will check bloods again.
a bit of disappointment to not complete maintenance, but technically I’ve now finished with FL treatment until this beast returns so I suppose that’s positive in some respects.
I hope everyone is doing good.
Sorry to hear your neutrophils didn't bounce back. Hopefully the GCSF will help the white blood cells bounce back. Best of luck!
Just to give a quick update, I am now done my six months of bendamustine/rituximab and will be starting maintenance on November 28. So far so good! I had a couple bumps in the road during my 6 months of chemo in terms of an infelction in the first month and breaking my foot around the third month. Having said that, my oncologist said I had an excellent response to the chemo. All my lymph nodes are back to normal size but one in my abdomen, which is a smidgen under 1cm. Neither my oncologist or my resident wanted to speculate whether that was lymphoma or not, stating that could be scar tissue. My blood counts are good. So far, I'm pretty happy with the response!
Good news Wayne, really pleased for you
Great news Wayne,
I hope the maintenance goes smoothly and that you can now enjoy a lovely long remission.
do keep us informed , I like to check on peeps from time to time.
That's magic! So pleased for you. It feels good to see a cohort of us getting through the chemo stage and on to that normality bit!
We're lucky. We're here for the longer term and things are good!
Hi gang normality that's the word hope everyone is beating this rubbish we have to deal with I'm going back to work 9th and then 2nd maintenance treatment 13th so chin up people once again amazing bunch on here helped me so much onwards and upwards
Great news hope work is going well, I have that up a couple of years ago having retired but find plenty to do or rather my wife finds me plenty to do!!
Must admit when I was first diagnosed I was frightened but my amazing team helped and the great people on here too many to name but you know who you are
Going to jump the gun and get in early
To each and everyone suffering this bloody disease I hope you all have a fantastic Christmas and get everything you wish for
Also hopefully the new year brings with it successful treatment and remission results for you all, I'll be raising a glass or two and be thinking of you all over Christmas and look forward to hearing successful stories onto to new year
Love and best wishes to you all
I 2nd that fred onwards and upwards everyone
Merry Christmas everyone! Thanks for all the great insights over the year. I'll second Fred's comments as well, Remissions for all and for all a good night.
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