Chorodial melanoma

HI JM 

I Was treated for OM in my early twenties much like yourself.  I'm 49 now so it was a few years ago although I still insist on a regular surveillance schedule . I can't speak about time scales in relation to Proton Beam that was well before my time however happy to be of any other help I can . 

 Regards OP

Hi  , just starting my journey at not far from your current age, Owen. I’m afraid I’m a plaque patient (mid-therapy right now) so can’t help you with Proton Beam. It takes a while to find out whether the plaque has worked. In this article, it seemed the journalist had proton beam follow-up around 2 months after: https://www.bbc.co.uk/news/technology-48950937

I hope it goes well for you, 

Owen, have you been having your liver as well as your eye monitored? Still trying to come to terms with what comes next!

Cheers both.

Hi B.O.W.l

I am happy to discuss things if we can continue via direct  message.  

Regards Owen 

Thanks Owen

Hi I did try and send you a direct message 

Hi Owen, I didn’t get anything, but I think you can ‘friend me’ and that will,allow me to message you. I’m no expert, but I think you can click on my profile and then connect+ in the top right, add as friend. Then I think I can message you. I’ve also put my settings to allow messages from anyone. Thanks for reaching out, and hope we can connect.

HI B.O.W.L , I wanted to check if you had received the second  message ?  

Yes, thanks, I have replied now.

Hi I’m currently having my treatment so would also be interested to know the answer to this. 
did you have to have the operation for pins in your eye before proton beam therapy ? 

Hello all!

Thanks for all the replies really interesting to read, and Taz yes I had the markers put in 4 weeks before the proton beam. How are you getting on?