Hi everyone
My husband has just been diagnosed with stage 4b DLBCL in his early 30's and has just started the intensive R-codox-M/R-IVAC treatment.
I guess I am just looking for others experinces with thsi treatment as it seems to be very intesive.
What will he be going through in the next few months? I want to be able to support him as much as possible and if I know what is potentially round the corner, I can be prepared.
He is tolerating the first 5 days well, I've just noticed he is more tired and has a sore mouth. I can only imagine it will get much worse.
As I am unable to visit him in hospital (COVID19) it has been really hard. Was anyone allowed home during this treatment or is he likely going to be an inpatient full time for 3-4months?
I'm also worried about fertility but focusing on getting him through this first.
Any stores/experiences would be really helpful.
Thanks,
Marbs
Hi Marbs and welcome to this corner of the Community.
Sorry to hear about your husbands diagnosis and treatment journey. Although I had a different type of NHL I do understand the treatment challenges.
There have been a few folks on R-codox-M/R-IVAC so let’s see if they are still looking in, you can also use the search tool and put in R-codox-M/R-IVAC to see the posts and hit reply to connect.
My understanding is that this is a full on treatment and as to him getting time at home between cycles, this is a question for his clinical team.
Fatigue may well build up over time so he needs to take each day as it comes but at the same time keeping some simple activity going actually helps overcome some of the fatigue.
We are around to help as best as we can ((hugs))
Every presentation will have a treatment plan that does the job the best so not all get R-CHOP.
Has moving on to Stem Cell Transplant been mentioned after this stage is completed?
