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Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
A support group for anyone affected by leukaemia to come together, share experiences...
Had my much dreaded Haematology appointment on Wednesday - here is how it went.
Him "Hello - any night sweats?
Me "Yes about three nights out of seven
Him " Any weight loss?"
Me "Sadly no"
Him "Haematologists are the only doctors who do not want you to lose weight! "
Me "Ha Ha!!!"
Him "Any lumps or bumps?"
Him "Cheerio then - see you in six months"
Me "Looking forward to it" (thinks actually not")
So in and out in less than five minutes - good really but I am surprised he took my word that I didn't have any "lumps and bumps". White Cells only up by 10 from six months ago so 90 but all is stable otherwise. So I live to fight another six months! xx
Best wishes to all xx
Hi Caroline and Jue,
I agree, if you are feeling OK in yourself and your blood results are within the 'normal' range, it's a good result.
I have a blood test tomorrow and hospital Wednesday. I'm feeling OK just hoping for good blood count result. I'm also having LFT (Liver Function Test), LDH, protein strip and Immunoglobulins done. I last had LDH, protein strip and Igs done in 2010.
Hope all are well,
I'm pleased that your results were Ok. I know what you mean though. My very first consultant visit was cursory to say the least. I remember being asked if I had any swollen lymph nodes and to be honest, I wasn't even sure where they all were! I said no then did a bit of internet searching to be sure I had nothing to worry about.
I go for blood results on Monday which I'm a bit worried about because I've not been feeling 100%.
Good luck Mikey with your blood and other tests - hope everything is Ok for you and Jue, hope yours are good as well.
What a joy to see some sunshine - it's a beautiful day, enjoy everyone.
Love and hugs to all. Junie XX
I hope and pray you get a good result on Monday.
You should get a copy of your blood counts.
Yes, it's a beautiful day down here on the coast. Will be off on my bike soon.
Seems like there's a few of us with fingers crossed this week!
I remember Sparkler hasn't been feeling too well recently and had trouble getting antibiotics that suited her. I'm sending special 'missing you' hugs to her, really miss her sparkiness on here.
Hope you are soon back with us Sparkler - Lots of love Juniexx
Take care Mikey - hope you've enjoyed your bike ride.
When is your appointment? Is it next week?
Thanks for the best wishes Jue and Junie.
Here's a couple of pics I took of the Sun low over the Isle of Wight
Mikey, Be well all
Those pictures are just gorgeous. Seascapes and skyscapes are really moving I think and there are some great ones at this time of year. The moon was wonderful last night, really low.
Take care, and speical thoughts to all who are having treatment or tests or feeling a bit jaded like I was before I saw those wonderful skies and seas!
Hugs and love JunieXX
Jue, Junie and Mikey good luck with you bloods and consults, wishing the very best for Christmas. great to hear yours was uneventful Caroline,, long may it continue.
I'm finally down from the ladder and have finished decorating and dressed the front rooms, picked up the new curtains and tie backs.today, it's only taken 7 years. Took a CLL diagnosis and a few others to get me moving, but I got there.(Can I stay in the good books till Christmas?)
Looking forward to catching up with everyone and getting into the Christmnas buid up. Wishing the best to alli
I'm sure you will be OK Jue. An infection wouldn't make much difference to the lymphocyte count, though it might, as you say, have moved it a couple of points. What level are they at?
As you are feeling OK, not anaemic, no night sweats, no significant weight loss, no increase in nodes, no fatigue?, then no worries!!
Good luck for Tuesday, will be thinking of you. Where did you go on the Isle of Wight?
Thanks Nick, good work with the decorating
Great news Caroline, I am really pleased for you.I went for my 3 month check-up on Thursday 29th and my Hb was UP, my Wbc were DOWN and my Lymphocytes were DOWN too! I am very pleased and don't have to go again for six months. Lizzy x
Hi everyone. Will be thinking of you Mike, Junie and Jue for your upcoming appointments and hoping all will be ok for another period of time.
Lovely photos Mike. Where I work (on 5th floor of Southampton General) we have spectaculer views of Southampton docks and wow - when the sun sets behind the cranes it really is something to behold! Wish I was artistic so could have some brill pictures - but no am not at all!
Jue we stayed on the Isle of Wight for a few days this year - with friends in a rented cottage - place called Nighton. It was very beautiful - near St Katherine's point which is wonderful. Lovely pub with folk music as well - great. I'd say Nighton was fairly magical!
I know Sparkler is out there somewhere glittering away quietly and she will burst back to the forum in an amazing blaze of light!!!! sometime soon. xxx
Not so lucky in the frozen North methinks! Blood tests are taken by phlebotomist at the PCT / Practice. Bloods go to the General Hospital and the results are returned to the Practice 24 hours later..........However you have to make an appointment to see the Doctor to go over the results and get the hospital printout. I slipped up by not making the two appointments together. I go tomorrow for my results but had to wait 10 days for the appointment. Next time I will book the bloods and the appointment at the same time. My bloods are not only for CLL levels so I've had a long time to worry about them. I'm trying to chill out and carry on !!!
Hugs and love to all. Fingers crossed for us all this week. Take care all.
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