Chronic myeloid leukaemia

Affected by chronic myeloid leukaemia (CML)? Join this group to share experiences and ask questions to people who understand what you're going through.

CML

Sparkler64
Posted by

HI everyone I hope it’s ok to join this group as my partner has just been been diagnosed with CML after going into A&E with severe pain in his left side. After examination found enlarged spleen/liver bloods came back very high WBC’s. Haematologist has said its CML, now awaiting official consultation next week. I joined this app after being diagnosed with breast cancer myself and found the posts helpful and supportive, so whilst I don’t have CML I hope it’s ok to join to support him x

juliekes
Posted by

Sorry you have this news. You will find that there is not much activity on this page , however there is a lot of information on sandy crane's CML advice page and there is a very helpful CML uk face book group which I recommend you join. Good luck.

Julie

Thehighlander
Posted by

Hi and welcome to this corner of the Community but sorry to see why you have joined.

As has been said, this area of the Community can be slow but the more folks post the more information is gathered and a support network can be grown.

As you have used the Macmillan site before you will know about our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

Our ‘Ask an Expert’. section is great where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.

Our Online Information and Support Section  is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.

Always around to help out as best as I can,

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela

Sparkler64
Posted by

Hi Julie

Thank you for the pointers much appreciated. Angela x

Sparkler64
Posted by

Hi Mike 

Thank you for your reply and pointers. I will encourage my other half to join himself as I found chatting to others in the same boat was really comforting. Whilst family and friends are always happy to chat its hard for them to put themselves in your situation. Angela 

Orkney
Posted by

I was diagnosed with CML 3 weeks ago, my WBC was up to 110. I've had blood tests, bone marrow test, I need an ultrasound to check my spleen as I have a stoma and they can't tell from a normal examination how my spleen is. I was put on Hydroxycarbamide for two weeks then on Friday my consultant changed me onto the long term drug Imatinib. 

There are side effects but obviously as  I've just started taking them I don't know how that will go.