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Chronic myeloid leukaemia

Affected by chronic myeloid leukaemia (CML)? Join this group to share experiences and ask questions to people who understand what you're going through.

Cml myleoproliferative

Posted by

hi just looking for advice if right group

had results of jak2 tests and says they are equivocal so positive or negative. Got to go back in December to test again. 

Also having tests as have raised iron and platelets just waiting on

what action hospital will take on this

Should I be worried or try and focus on getting back to normal as been worried sick waiting for today’s results and full of anxiety 

thanks for you time

Posted by

Hi and welcome to this corner of the Online Community.

You will find that this groups is slow but there are a good number of people in the group so lets see if anyone comes along and give you some help.

We also have our General Leukaemia Forum so may be worth having a look.

We do have Caroline, our Macmillan Heamatology Nurse as a good place to set some questions as she is working in a top UK Hospital but. She is a Volunteer Experts so please allow 2 working days to get a reply.

When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names.

Always around to help as best as we can.

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela