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Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
A support group for anyone affected by leukaemia to come together, share experiences...
hi I am wondering if anyone can share any experience they have had with cml stem cell transplants
my boyfriend is 33 and was diagnosed with cml last July 2018 he has had all 3 tki tablets and has become resistant to all of them and is having a stem cell transplant next month
i have spoken with consultants and nurses at the hospital but was wondering if anyone has gone through the same or has had a family member or knows anyone who has gone through this?
Hi SLS55 and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear that your boyfriend has CML and is having to go through Stem Cell Transplant (SCT)
I am Mike Thehighlander. I did not have CML but a rare type of Non Hodgkins Lymphoma - I have been through two SCTs with Stem Cells from my brother and I am in remission so be encouraged.
I help out in our dedicated Stem Cell Transplant Forum. This would be the best place to meet up with a lot of folks from all types of blood cancer who have been through the process.
SCT can be hard work but all very do-able. The folks on the SCT forum have walk the walk so can talk the talk
Follow the link above and join the group by hitting the ‘Join the Group’ tab just under the main group name. At this point select how you want to receive email notifications when someone answers your posts.
You can either go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post. You can also have a look through the various threads by going into the ‘Discussions’ section.
When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names like Thehighlander.
I will keep an eye open for you ((hugs))
Mike - Thehighlander
It always seems impossible until its done - Nelson Mandela
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