Chronic myeloid leukaemia

Affected by chronic myeloid leukaemia (CML)? Join this group to share experiences and ask questions to people who understand what you're going through.

Stem cell transplant for cml

SLS55
Posted by

hi I am wondering if anyone can share any experience they have had with cml stem cell transplants

my boyfriend is 33 and was diagnosed with cml last July 2018 he has had all 3 tki tablets and has become resistant to all of them and is having a stem cell transplant next month

i have spoken with consultants and nurses at the hospital but was wondering if anyone has gone through the same or has had a family member or knows anyone who has gone through this?

Thehighlander
Posted by

Hi  and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear that your boyfriend has CML and is having to go through Stem Cell Transplant (SCT)

I am Mike . I did not have CML but a rare type of Non Hodgkins Lymphoma - I have been through two SCTs with Stem Cells from my brother and I am in remission so be encouraged.

I help out in our dedicated Stem Cell Transplant Forum. This would be the best place to meet up with a lot of folks from all types of blood cancer who have been through the process.

SCT can be hard work but all very do-able. The folks on the SCT forum have walk the walk so can talk the talk 

Follow the link above and join the group by hitting the ‘Join the Group’ tab just under the main group name. At this point select how you want to receive email notifications when someone answers your posts.

You can either go to the 'Start a Discussion' tab just under the main group name. Set up your own Discussion and introduce yourself to the group - you could just copy an paste what you have in this first post. You can also have a look through the various threads by going into the ‘Discussions’ section.

When you feel up to it try putting some information in your profile. This really helps others when answering. It also means that you don't have to keep repeating yourself. Just click on YOUR username, select 'Edit Profile'. Put as much or as little in your profile and you can amend it at any time - you can see members profiles by hitting our forum names like .

I will keep an eye open for you ((hugs))

Mike - Thehighlander

It always seems impossible until its done - Nelson Mandela