Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
A support group for anyone affected by leukaemia to come together, share experiences...
Hello to All
i was diagnosed with CML around 5 months ago. I’m still having problems with some of the side effects associated with Imatininib, hoping they will lessen with time! My main concern at the moment is that I’ve had a huge drop in exercise capacity and increased breathlessness. I now have difficulty walking places I used to run and it appears to be worsening. I’m currently being investigated for a possible heart problem and am becoming concerned that imatininib may be worsening the condition. Are there any evidence and research documents available on any possible drug interaction on the condition?
hi Mintsauce and welcome to the Online Community but always sorry to see folks finding us. I am Mike Thehighlander and I am dropping in past from one of our Lymphoma forums to say hello.
You will see that the CML forum is rather quiet and this will be due to the lower numbers having the condition but lets look for someone to pick up on your post.
We also have Caroline, our Macmillan Heamatology Nurse volunteer who you can post questions about all things Leukaemia - just follow this link and post away - it may take a few days for her to get back to you.
From my long treatment journey I have had a few occasions where treatment has had an effect on my heart but all turned out ok in the end.
It would also be really useful if you could put something into your profile as this does help others when replying to you or for those looking for support and information as they can read a bit about your journey so far.
Just click on your username and then select 'Edit Profile' under the 'Profile Settings'. If you're not sure what sort of thing to put just click on my username, Thehighlander to read my profile but my journey was rather long so it is a touch like War and Peace ;)
All the best
Mike - Thehighlander
Some journeys take us far from home...... but some adventures lead us to our destiny - CS Lewis
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