Ask Caroline, a Macmillan Nurse working with people who have Leukaemia, Myelodysplasia...
A support group for anyone affected by leukaemia to come together, share experiences...
Hi all. I am new to the group. Just thought I would drop a quick line about my experience. I was diagnosed oct 16. For the first year I was on imatinib and had very little side effects at all. Continued working without any problems. In dec 17 they realised I had become tolerant to imatinib after many tests and more bone marrow etc they finally in March they changed me to dasatinib. By April the pain in my legs and joints was getting really bad. Trouble walking. They changed me to Bosutinib a couple of months ago hoping that would ease the side effects. To no avail. I'm now having to use a stick and wheelchair to get around. Unable to work. Stuck in the house alone when the wife and kids are at work/school. Its been really hard on me and my family.
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