Chronic myeloid leukaemia

Affected by chronic myeloid leukaemia (CML)? Join this group to share experiences and ask questions to people who understand what you're going through.

Atypical CML

CazLee
Posted by

Hi Guys

Anyone in her with atypical cml?
My OH has just been diagnosed after a year long battle. He is very ill now and has been given a poor prognosis. The two mutations he has apparently are very rare and there is no research or treatment plans into this particular variety. Deep joy. He is on the 100,000 genome project plus he is a patient on the rare cancer weekly conference. Just hoping they can come up with something. They have talked about massive high dose chemo before they do a transplant with 3-4 visits a week to hospital. I don't know how I am going to cope with that and work.