Chronic myeloid leukaemia

Affected by chronic myeloid leukaemia (CML)? Join this group to share experiences and ask questions to people who understand what you're going through.

Cramp as a side effect

aki 2013
Posted by

Hi

I was diagnosed with CML in Oct 2013 and have been on Nilotinib ever since. I'm in remission but the Bcr-Abl is still detectable (very low).

I was wondering if anyone else is also using Nilotinib and experiencing cramp in their hands and/or feet? If so, have you found anything that helps relieve it?

Thank you

Aki 2013

juliekes
Posted by

Hello ,  I am on nilotinib too although cramp is not my particular problem I know that it seems to be quite common. join the Facebook group  cml uk its a very friendly group full of support and advice you will definitely get a lot of answers to your questions .  good luck 

Julie

aki 2013
Posted by

Hi juliekes,

Thanks for the tip. I don't actually use facebook but thanks for your reply anyway.

Do you have cancer related fatigue? I have done throughout my treatment which started in Oct 2013, but I find that my consultant doesn't take it very seriously.

Aki 2013