Hi there all....my mind is racing with the what ifs especially after from initial results from the MRI that we were told on Wednesday. last few days have been a blur to be honest. I Had biopsies taken that were cin3 with glandular involvement and then the MRI has shown a mass that been graded 3b or 2b. after mass and Cancer was mentioned not a lot else went in to well.
What does a Pet CT scan show and look for. I am absolutely terrified and trying so hard to be strong...…. I have 2 biological children and 2 step children but they had been through hell and back and lost their mum already it scares me how all my girls are going to cope with my partner......he so scared he is going to lose someone else.
follow up appointment booked for Thursday at 14:30 where our whole lives will change as consultant not convinced the biopsy is wrong.
I know it's difficult but try and take one step at a time, to prepare for your appointment it's handy to note down your questions and take a note of the answers they give you. You should also have a clinical nurse specialist who you can call at any time for advice, ask if you have one and for a contact number. The Macmillan helpline is also a good general support it's on 0808 808 0000.
Whilst you wait keep busy and distracted doing things you enjoy to keep your mind and hands occupied, things get easier when you have a diagnosis and treatment plan.
As far as I know a PET CT scan is like an MRI scan but shows things in more detail, it's common for some areas to do both scans, it helps the medics to come up with the best treatment plan for you.
Lots of love and good luck for Thursday, let us know how you get on
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Thank you so much for your reply arla means so much to me.
I've been trying to keep myself as busy as I possibly can and all whilst trying to act normal as I can as our 4 children still are not aware of the whole situation that .
Our situation is so so different I have two biological children and 2 step children ......my youngest step daughter has PTSD from a RTA where she was given life threatening ininjurjes and then they both lost their mum 8 months later.
How are they going to cope with this bomb shell once we we tell them I dont know what I'm meant to do what
How did you get on at your appointment today?
It sounds like your family has been through so much already, to help them cope with your diagnosis I'd recommend your local Maggies Centre or a local cancer centre, they offer support for patients and their families, the Macmillan helpline can also point you to support in your area, they are on 0808 808 0000. The website has a load of information about talking to children about a cancer diagnosis too.
Everyone deals with things in their own way, some folk want to talk about it with you, others will dance around it and some folk will keep their distance, I think they just don't know what to say or do. Take things at your own pace and ask for help as and when you need it, there are loads of cancer support services out there.
lots of love
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