Cervical cancer

A support group for anyone affected by cervical cancer to come together, share experiences, and ask questions.

Please help me

summer1234
Posted by

Hello

i am new and in desperate need of help, I have a new diagnosis of a large invasive cervical carcinoma, does this mean I am terminal? Awaiting scans etc but feel like ending it all, have been given no information, she could see the tumour at examination and everything I have read ... visible ... large .... invasive equals very short life expectancy

also said inoperable so does that mean just pain killers? My only symptom was irregular bleeding and slight ovary pain and anemia which I thought was due to the bleeding now my life has ended, I can not process this, had a wedding in January and guess now I won't be going

can anyone please please help me x thank you

MS100
Posted by

Dear Summer1234

Sorry to hear about your diagnosis, you don't have all the details yet, there will be more information after you have had all your scans etc, and they will be able to discuss a treatment plan.

In 2011 I was told I had advance cervical cancer and that they wouldn't operate but there was a lot they could still do. After all the scans, tests etc, I was told my treatment plan which was chemo in combination with  radiotherapy (external and internal). 12 weeks after the treatment had finished I had a MRI and was told that the treatment had worked.  There was follow up appointments at the hospital getting further apart as time went on and in 2017 I was discharged form the clinic.

Do you have a specialist cancer nurse assigned to you?  They can help with your questions, you could  also call the nurse on this site here during the week.  

I would not advise Dr Google, but would stick to this sites like this one for information

Best wishes

 Mo xx

Mo

BFalcon
Posted by

First thing you have to do is stop looking it up on the internet . I have the exact same thing you do and was told same thing. I started looking it up on internet and I went into state of depression and freaked out so I reached out and talked to a professional and it really helped.

I had chemo 8 rounds with chemo with, Taxol, carboplatin and Avastin after 4 rounds of Chemo Dr did scan it see if treatment was effective and the tumor had shrunk to almost 1/2 the size.  I continued with 4 more heavy chemo treatments and had another scan June 27th and Dr said scan showed no changes in tumor/ cancer since last scan but also no progression or spreading which is good news . The plan now is to put me on Avastin every three weeks to keep the tumor / cancer stable and from growing or spreading.

I will admit it's not the news I wanted but if the cancer can just stay stable and not progress I can live a long time and have no problems . My oncologist said in the meantime he will be consultanting with other oncologist to see if there are other options available for me. 

Don't give up there is always hope and Dr don't know everything because everyone is different and each one of us react differently to treatment and everyone's cancer responds differently .

Summer I agree with the nurse reach out to them for help.  Having a positive attitude makes a big difference. 

God bless. 

summer1234
Posted by

Thank you, they mentioned the tumour is about 5cm is this very big and I assume this means I'm stage 4? 

Just havr your replies helps thank you x

BFalcon
Posted by

I was also told mine was 5c. You can't assume as far as staging goes however as my pet scan from June 27th reads my tumor now is only 2. 5c by 1. 6m and is not progressing . Trust in your team of doctors to come up with a treatment plan

In the meantime stay off the internet and reach out and talk to a professional.

God bless. 

summer1234
Posted by

I'm am glad you are doing well and can't thank you enough for both replying to me,

my mind is in total overdrive and my body in shock, I hope once I get all off the info will find some strength as at the moment I see no hope 

  • again thank you x
BFalcon
Posted by

Summer 1234, I understand I feeling the exact same way November 2017 but I got all the info and spoke with Dr and there was a plan of treatment.  

I also reached out and everything is going to be ok.   

Trust in God and be strong . 

Arla
Posted by

Hi summer,

I'm so sorry that you have found yourself here, the other ladies have given you amazing advice already. I just wanted to point you in the direction of support. Firstly there is the Macmillan helpline, they can't diagnose but can chat to you generally and give you advice about work, finances, emotional support locally, basically anything you need help with. They are on 0808 808 0000 from 9am to 8pm Monday to Friday.

There is also the eve appeal https://eveappeal.org.uk/supporting-you/ask-eve/ where you can speak to a gynaecology nurse specialist. Jos Trust is another resource https://www.jostrust.org.uk. If you want to know more about cervical cancer Macmillan has a booklet that you can read about the different stages and grades it's at http://be.macmillan.org.uk/Downloads/CancerInformation/CancerTypes/MAC11648cervicalE13lowresPDFALM20170724.pdf.

Lots of love 

xxx

summer1234
Posted by

Hi All

hsving a really bad day again, how did you all find the strength to be so brave? I am having terrible rushes of anxiety and fear

my knee pains are really worrying me, two weeks ago I was living a normal life and now facing this / I was healthly or so I thought!

 I feel like I am no longer me, 

im sorry to be lingering in such self pity but I have had several major bad life events and had just got on track 

 need hope I can surivive a few years from this

Again thank you, this the only place I feel safe at the moment x

MS100
Posted by

Hi Summer,

I tried to keep myself busy, doing things that I liked. Not all that easy when you have had such news.  I did go to my local Maggie's Centre, where I was able to speak to someone. I don't know if you have one near you.  It is always good to chat to people who know what you are going through. 

I also had a couple of friends who were fantastic, coming to appointments with me,  I suppose just the fact that they were there for me.

I do believe that once you know what is your treatment plan is you will feel much more in control.

There are lots of lovely people on this site that have been there and will be here for you.

Be kind to yourself.

Mo

Mo

summer1234
Posted by

Thank you Mo, the waiting game is very very hard and just feel I'm going to be hit with the worse ever news, again thank you for your kindness 

BFalcon
Posted by

Summer, Think positive thoughts. I know it's easier said than done but you have to or it will just make you go insane with fear. I have fear and still need to talk with someone it helps.  We all have up and down days but you take one day at a time and until you get all the information you can't make any assuming.  

Blessings, 

summer1234
Posted by

Thank you for your continued kindness 

summer1234
Posted by

Hi again, they are saying the tumour is filtrating into the  upper vagina! Does that mean I have two cancers? Any similar experiences please?  X

BFalcon
Posted by

No you don't have two cancers. It is just like mine was . Your Your treatment team we'll come up with a treatment plan once all the tests are back. 

Stay positive I Know it's easier said then done but it really helps.