Hi,
I'm new here, 46 years old, joined to find others in similar situations to myself for support and advice.
Went for my routine smear December 2024, results came back within 2 weeks with HPV and high grade dyskaryosis (moderate) and I was booked in for a colposcopy for mid January. Was informed everything looked normal, however looked like I have 2 cervix (first I'd ever heard) and was booked in for ultrasound (confirmed i do in fact have 2 wombs) and advised I'd return for another colposcopy and repeat smear on both cervix in 12 weeks time.
Returned for the repeat smear and colposcopy on both cervix about 5 weeks ago, again everything looked normal on colposcopy and was advised to wait for repeat smear results. These have come back this week with high grade dyskaryosis (severe) and I'm due another colposcopy and advised lletz procedure next Monday.
I'm just worried sick at the moment that something has been missed on my previous 2 colposcopy and feeling a bit in limbo so just reaching out here for people who've been through it and how you dealt with the uncertainty and worry.
Thank you in advance x
Hi D79 and welcome to our group.
I’ve heard of women having two wombs, but haven’t come across someone with two cervices before, so that’s a new one on me.
I can understand why you would be concerned that something might have been missed in the past, but hopefully that won’t be the case, and the when the tissue is analysed after the Lletz, it will confirm the result of pre cancerous cells only.
It’s always worrying waiting for tests and results as we go through the diagnostic process and I’ve found it best to keep busy and distracted as possible. However I haven’t had a Lletz procedure as I went straight to a cancer diagnosis after a biopsy so my situation was different.
Hopefully some of the other ladies in the group will come along and share their experiences, and that you won’t have long to wait for your results. I hope your procedure goes smoothly for you.
Sarah xx
Thank you for taking the time to reply.
Yes it's not something I'd ever heard of at all so after an ectopic and 2 healthy pregnancies plus many regular smears and scans etc, it's come as a bit of a shock that someone has only just noticed I've got two of each now!
I know people say not to Google anything but it's really helped me feel well informed about what tests and procedures I might have to come. I'm the sort of person that feels better taking in as much info as I can and prepare myself for worst case scenario so that anything that isn't that bad feels like a bonus. I think my main worry at the moment is I just don't know what i need to prepare for yet. I felt reassured with the previous colposcopy results so to get these latest smear results it's thrown everything up in the air for me again. I'm doing my best to hold myself together at the moment and not show I'm worried because I've got two teenage sons sitting their GCSE and Alevel exams right now and I don't want them to take any of my worry on for themselves.
I'm just hoping that Monday will give a clearer idea of what's going on if anything x
It does seem astonishing no-one’s spotted this before-no wonder it was such a shock!
It’s understandable to use google when you come across something like this I imagine, because it might be difficult to connect with others who have the same condition as you have.
But I’d still exercise some caution at the moment with google, as having a Lletz procedure is usually a straightforward procedure and normally all that’s needed to remove abnormal cells.
The worst case scenario I presume in your thinking would be that cancerous cells are found by pathology after the Lletz, but in that worst case scenario you still can’t anticipate what the next steps would be, so it’s hard to know what to prepare for except the procedure itself. After the Lletz is done there’s still a wait for the pathology results and only then will you know what could be next.
I think it’s wise not to worry your children at this stage. I didn’t tell my daughters anything until I’d had all my results, had a confirmed diagnosis, and been given a treatment plan. Then I was able to tell them and answer any questions with positivity rather than have them worrying about the thought of cancer unnecessarily, but we are all different and want to deal with things in our own way.
At the start of the process for me, I wasn’t thinking of any worst case scenario, as it hadn’t crossed my mind, so that saved me from potential worrying and I just got on with my life until I got my results.
Sarah xx
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