Colposcopy punch biopsy & MDT meeting - so confused

Hi Sarah,

so I called for the results of MDT they said they couldn’t carry mine out as my biopsy results came back that day so missed it, so MDT is now on 9th June, I called for my results and was told by a nurse she can see GCIN and CIN both 3 high grade but wasn’t signed by a doctor so couldn’t tell me much more, I then received a letter for Lletz surgery under general as it’s a large area to treat on the 14th June they emailed me about what will be carried out and it’s says Lletz but also Hystroscopy (which no one mentioned at all) I have no idea what this is and why I would be getting this as well on the same day unless there is something suspicious.

please if anyone can shed some light as I’m not getting no answers 

Hi Loulou94 

Thank for coming back with an update.

Well, you’re moving forward with answers but slowly it seems! So, basically CIN3 and CGIN are different types of pre cancerous cells. CGIN refers to glandular cells inside the cervix, and CIN3 are cells found on the surface of the cervix. 

It’s normal to have a general anaesthetic for the LLETZ which will remove those cells when a large area is involved, and It’s also common to have a hysteroscopy (I had one as part of my diagnostic process) although mine was not under a general. This is a tiny camera which can look at your womb. The CGIN cells grow higher up in the cervix, so the hysteroscopy is a good way to check things out while you are under anaesthetic to make sure they have identified all the abnormal cells for treatment.

Sometimes biopsy results can delay when you can be discussed at the MDT meeting which is what’s happened in your case, but they will want to have your case discussed before your procedure happens as you have different types of cells involved. I don’t think you can make any assumptions about things at this stage-it’s all standard practice really. 

So far, what has been found, from what you have been told, is not cancer and the LLETZ treatment will hopefully be sufficient  to remove the cells, which is good news! And it’s also good that you don’t have long to wait to get this done. 

Hope this can help reassure you a little.

Sarah xx

Thank you so much Sarah, honestly you have explained things so much better then anyone else has and makes so much more sense and I do feel a lot more reassured. I finally come to terms with Lletz even started to forget about it and then the womb came in and I freaked a bit today but honestly reading this has helped and hopefully will get all the answers soon. I will also update once I know more.

thank you so much for the ongoing support as I finally feel at ease and I don’t think it is anything sinister but just hope it’s all over soon. I best just get use to the waiting xx

I can understand you being anxious when you’re not getting answers to your questions-it’s bound to make you freak out a bit. 

But if you think about it, the cervix is the neck of the womb so it’s simply good practice to check everywhere in the area to make sure they get everything. I would think when you mentioned “rare cells” in your original post this is referring to the CGIN cells which are rarer than CIN. These cells are glandular cells, and less common than CIN, but they aren’t actually rare. 

These cells have the potential to develop into adenocarcinoma if left untreated, which is the type of cervical cancer I had hence why I am aware of them. But you are having yours removed, so your case is very different to mine. I unfortunately had a cancer diagnosis from the outset, so effectively missed out getting the CGIN stage identified, but you have had your cervical screening and these have been identified in time to have them removed before they become more serious. 

I’m so glad you are feeling a bit more at ease with everything and hope everything goes well for you.

Sarah xx

Honestly thank you so much Sarah and speaking from your experience is very reassuring I’m sorry to hear you had no GCIN sign before your cancer, what I can tell you is you have turned my night around I feel so much calmer and have more understanding then I did.

thank you and will keep you updated with any outcomes xx

You’re very welcome Loulou94  and thank you for your kind words. 

I’m just very glad to have been able to help you tonight and help you especially feel calmer about everything.

I really appreciate you coming back with your update and look forward to hearing from you again when you’ve had your procedure done. 

In the meantime if there’s anything else you need to ask, please do so. Don’t sit in silence and worry yourself.

Sarah xx