I have just been diagnosed with Stage 2 HER2 Positive cancer. I'm so scared and have limited information. Due to covid I have had one appointment telling me about my Stage 2 and have another appointment tomorrow about the HER2 positive via a video call that I'm not confident I can set up. They said they would explain my treatment abit in this video appointment.
They did said I would need chemo first with extra drugs because of the HER2 positive but couldn't tell me how long, how it worked or anything. I'm 46 and am a single parent to a severely disabled Daughter, she has a rare condition with no explanation why it happened and my Son is a strapping 6 footer with no health problems at all.
I just wanted to stay hi and wondered where I would get info from anyone treated this way round. with chemo possible for 12 months, extra drugs then surgery. Thank you in advance.
Sorry about your news. I was diagnosed with Grade 2 stage 2 HER2 positive breast cancer in October 19. I had neoadjuvent chemo x4 doses of docetaxel herceptin and pertuzumab then had surgery now having more chemotherapy then radiotherapy. It’s a long process but doable. My advice would be to write everything down. I had a telephone appointment with my oncologist and found it good as wrote everything down the questions I wanted to ask and because I wasn’t worried about my body language felt more able to ask and write down the answers. Pros and cons to both. Hopefully you’ll have a face to face soon. I found beginning the worst once you know you’re treatment plan you can have something to focus on. Take care xxx
Thank you for your reply, it’s really helpful to me. Good luck with the rest of your treatment. xxx
Warm welcome to the group - a great place to find yourself at a tough time.
The chemo is usually for around 18 weeks; it is the other two targetted (extra drugs) that you take for a year but these are easier to cope with.
No doubt you have a head full of questions or worries so don't hesitate to post any messages, we're all here to help - The only silly question is the one that isn't asked
J was diagnosed with HER2+ breast cancer way back in May 2012, so be reassured this can be tough some days but is do'able.
Group Hugs, G n' J
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Thank you so much Dreamthief (G)
It really is reassuring to know others have trodden the path I am fearing to tread and are topside (or nearly). It makes me feel I am not alone in this. So glad to be part of this community, I know it will be a lifeline for me, that's for sure!
Hi Emma my story on my profile just click on my name and have a read . I'm just coming up to my first year anniversary of diagnosis.
I had mastectomy 8 days after being told I had cancer at results meeting two weeks later was told HER2-positive.
So chemo started August finished December ( three weekly cycle ) now on Herceptin injection three weekly for year and an infusion every six months for three year . All treatment plans are specific to you the patient but please be reassured when you get your plan you start to feel better and when treatment starts it's a relief .
Its all the waiting in between that's horrible your imagination takes overs painting horror stories .
Ok cancer not pleasant to say the least but they can do so much now to treat it . Just take one step at a time don't worry about what's coming next just deal with each day at a time it's all doable .
just come on here and ask when you have questions . If you can't sleep you can usually find someone on the Awake thread . Or just read some of the posts on there and have a laugh we're all a bit mad on there .
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