We understand that people with cancer are worried about coronavirus. Here is the latest guidance. We will update it regularly.

Breast cancer

Affected by breast cancer? Join this group to share experiences and ask questions to people who understand what you're going through.

••• June BC Radiotherapy Club 2020 •••

Dreamthief
Posted by

    Welcome to the June Radiotherapy Discussion  

This is a place where you can ask for advice, give and/or receive support and just query anything involving BC radiotherapy.

A couple of quick tips, if you are using a car to your radiotherapy appointments daily, ask if your hospital offers free or discounted parking for people going through treatment - Most do.

For more tips, here's our Radiotherapy Tips Page and other replies you may find useful.

External Beam Radiotherapy information link.

Here's also a link from the Macmillan Information pages, and this helpful video that some of you may want to have a look at.
This is a link to The May Radiotherapy Chat if you need to backtrack - It will be locked shortly for replies.

If you have any questions, just holler - someone will soon reply with some support or advice.
Keep using the creams post rads as you will still be 'cooking' for a couple of weeks.

Take care - You're almost there,  G n' J

Shelby 123
Posted by

Hi 

Which hospitals offer partial breast radiation?

Thanks Shelby

ClaireRus
Posted by

Hi Could somebody put on here the chart from last month the accelerated Radiotherapy .I found this very useful. I start tx on th3 4th

Dedalus
Posted by

Hi All

I have some RT questions which I would appreciate some help with.  This is in the context of clear margins, no LVI or nodal involvement.

With regard to left-sided treatment which RT would be least detrimental to the heart and lungs, eg 5 or 15 sessions, or partial breast etc?

Would axillary node treatment be required or recommended, if all nodes were described as clear?

Which RT is considered to be the most effective, in the above context?

It may be a tricky one but which RT tends to have the least long term problems?

Generally, how long does it take a treated breast to return to normal?

Does the breast always noticeably shrink after RT?

Is the scar itself, and hard scar tissue within the breast detrimentally affected?

The consultant said no endocrine therapy during RT.  They would not be prescribed until after. What has been your experience?

Is R1 R2 really the best?

Should /can a bra be worn during and after each session?

Did you drink a lot of extra fluid during treatment?

Thanks

D

Dreamthief
Posted by
CBRY
Posted by

I am on day 3 of the FF treatment. 
The radiologist said the drinking water thing wasn’t for Breast mainly things like pelvis. 
I got Flamigel from the hospital and didn’t bother with the R1 R2 as that is apparently made for a longer course of treatment and not the FF. The Flamigel seems great, there is also an itch cream which I will ask for tomorrow as it has drove me mad all weekend. 
The nodes don’t get it directly but they did say that when the beam came in from the side it would catch under my armpit.

Does anyone know if it is standard to get a boost? No one has mentioned that to me at the hospital. 

Claire

socialdancer
Posted by

Hi CBRY, I’ve had five days, followed by four days boost - last day tomorrow and I’m excited about it because then I’ll be finished woo hoo! 

Dedalus, you don’t wear a bra during treatment but I’ve worn one before and after. I don’t know about R1/R2, no one spoke about it over here. I’ve been using aqueous cream and the radiotherapist remarked on Friday that my skin is looking very good. I’m a little spotty over towards my cleavage and have been using Bepantiseptic cream on it. I’ll be seeing the nurse tomorrow after my final session and will mention it to her, in case she can recommend anything better.  

Hubby and I are planning a little picnic tomorrow to celebrate me finishing my treatment and coming through this whole experience. I’ll also wear the lovely earrings I bought myself as a memento of this time in my life. 

ClaireRus
Posted by

Thank you .

Dedalus
Posted by

HI socialdancer

I should have expressed myself more clearly.  I don't expect a bra would be worn during the actual RT.  I was trying to establish whether one could be worn whilst attending for RT and immediately after RT.

BW

D

Silverberg
Posted by

Hi Dedalus

I'm afraid that's a lot of questions and to be honest the answers for each one is probably different for every single person!

I've had BC twice, 13 years ago and last year. Same cancer type, same surgery,except for the number of nodes removed. Same number of sessions and each boob has reacted differently. I have reacted differently and the side effects have been different.

It would be difficult to give you a definitive answer. The last question is the easiest to do. It isn't necessary to drink loads more water. Normal good hydration is really all that's needed.

Do what the staff say, they are the experts and they will be watching you very closely. Be kind to yourself and give yourself time. It is as they say the best healer.

I'd rather be polishing a Red Arrow.
Silverberg
Silverberg
Posted by

Hi Socialdancer

I do not wish to be a prophet of doom, but just be a little cautious. The actual treatment may be nearly over but it's affects can carry on for while after the last hospital visit.So be kind to yourself.

Enjoy your picnic and your earings

Hugs

I'd rather be polishing a Red Arrow.
Silverberg
Jostar
Posted by

Hello everyone, I'm about to start RT mid June. I have been given 8 working days of it. I wasn't even aware of the shorter vs longer 15 days of RT until I came across this group. If anyone can give me any tips on how to get through it then that would be fab. 

Jostar
Posted by

Sorry but I'm new to the group. Can someone please tell me what FF and R1 and R2 mean?

Thanks

Dreamthief
Posted by

Hi 

Warm welcome to the Rads discussion.

FF it the Fast Forward method of delivering the rads to keep hopsital visits down to 5 days instead of the usual 15 while this Covid is still around.  See the image above   Are yours 5 days + 3 boost sessions ?

R1 & R2 are gels that can be used for radiotherapy instead of standard creams offered - but as these are pre-packaged for the 15 daily sessions regime it is a bit pointless getting them for just the 5 days.

Hope this is of some help, stay safe, G n' J

Jojodot
Posted by

Hi ,

Sorry but can’t answer all of your questions as I am not a specialist. Best ask your consultant on most. 
I am just about finished 15 radiotherapy treatments.


I was told to keep well hydrated but within normal healthy limits, meaning don’t let yourself become under hydrated.

I decided not to wear a bra during the entire 15 +days of treatment - just a vest top. I wasn’t told this but just thought it best. Then it means that nothing rubs on the affected skin and also keeps  it cool and more open to air circulation especially in this heat. It was suggested to me not to wear a new bra and now I know why - not even a white vest top!! Reason being is that the radiographers use a pen to draw dots/dashes on your skin to help line up the treatment. This can be blue red or black. Of course the day I wore a new white vest top they used red pen and now it’s got pink marks on it. So if your wife wants to wear a bra I recommend she doesn’t wear her best. 
I didn’t get R1 or R2 and so far I have been ok. The dept gave name zero base to keep area moisturised but said to use it lightly.

My treatment is on my left side so before each zap I have to take a deep breath and hold it for 20-25 seconds- this moves your heart out of the way. So breath holding practise is recommended.

My nodes came back as negative but due to my breast pathology results it was recommended to me that my nodes were treated with radiotherapy. I may be wrong but my feeling is that they won’t do ANC unless it is really necessary and I believe this can cause discomfort and more risk of lymphodema.

Hope this helps,

Jojodot X