Breast cancer

Affected by breast cancer? Join this group to share experiences and ask questions to people who understand what you're going through.

**AUGUST CHEMOTHERAPY CHAT 2019**

Blackcat20
Posted by

Hi Ruby1970,

So sorry to hear that you are in hospital, but it is good that you were checked out quickly and are getting the antibiotics you need.  It is scary that side effects can happen so suddenly, particularly just when we think that we are getting used to a treatment.  I had a night’s stay in hospital last weekend, after a run of low temperatures and some flu-like symptoms, and I was also told then how quickly sepsis can set in, and how we need to get any possible symptoms of infection checked out.  I hope that you will feel better very soon, and that you will get home soon too.

Blackcat xx

Blackcat20
Posted by

Hi Northerner,

Pleased to hear that you are still doing well - hopefully it will continue without any side effects rearing their ugly heads!  I know what you mean about questioning every symptom, and wondering what is normal now that we have been pumped full of potent drugs that are doing strange things to our bodies.  

The latest thing to happen to me is that my hair has completely fallen out.  Strands of it started to come out over the weekend, and it has totally departed over the past 24 hours.   I was planning to have a head shave tomorrow, but it has beaten me to it as there is now nothing left to shave!   So I have been trying out my two new wigs today (in temperatures of 33 degrees, which is probably not the best situation in which to road-test a wig).   So far so good, although I did have one unfortunate moment when there was a sudden gust of wind and I thought the wig was going to take flight, as I could feel it lifting.  I guess I need to look further into ways to secure it.  I believe that there is something called “wig tape”, although when I had my wig appointment this was not mentioned by the fitter, who just recommended using a wig cap underneath.  Hopefully I will get more confident wearing it over the next few days.  If anyone who is an experienced wig-wearer has any tips, they will be gratefully received!

I hope that you are having a good evening, and still enjoying the sunshine.

Blackcat xx

Northerner
Posted by

Hi

Definitely not the right temp for trying new wigs . I don't go for wig til the 5th which will be my 2nd week of cycle . Hope fully will have wig before anything major happens . Already had it chopped So hair getting very little handling . 

Got enough scarves and hats to get on with . 

Keep getting a picture of you running after wig  lol 

Ive got fitting this week for gel prosthetic ( Clarissa ) to replace softie ( Freda ) .

Still getting on ok bit more sleep last night so fingers crossed and toes .

The only thing that I've been that has been diff with me is my bowel. 

Ive a pre excisting  condition that meds keep me loose shouldn't get constipated .So oncologist removed meds in case I got bad diahorea. Instead of which I seam to be going  often but normal ? Silver lining ..Perhaps Chemo curing me .

Sun just gone in so off to water veggies . Have fun with your wigs 

margaret  

love and hugs 
xoxox
Margaret
Londonmumof2
Posted by

Hi @Blackcat20 I love the idea of the wig in the wind (though I imagine mortifying if it happened!), and know that people wear wig tape when going to the gym etc. And find it really good.  I have a wig,  but am hoping to survive with the ageing biker/ poundland Barbie look for as long as possible.

EC number  3 tomorrow and cold capping again. I still have hair on top and bottom but the inside is getting a bit sparse. I've still my eyebrows, eyelashes and a lot (in different places,  not gorilla- like!) of body hair. I'm not sure when is going to disappear,  but I'm having some hair growth on my head,  as roots are showing and I trimmed my fringe this weekend. I've a bag from each cycle,  and a lot less - 1/6th ther amount- this time compared to cycle 1.

 Good luck finding the perfect Clarissa! I've not claimed mine as I'm swollen from the chemo and waiting for everything to settle.  Let us know how you get on,  and if it's  odd having weight there... I'm using my softie and a knitted knocker at the minute with a sports bra to stop it riding up to my armpit:)

Wish all of us having chemo tomorrow good luck,  a few of us are going into battle like the walking wounded! X

feemcg
Posted by

Well neuts must be up, didn't get call not to go in.

I have sparse hair regrowing on top of my head but at the same time I'm losing my lower lashes....and my leg hair is still growing as normal...weird. I've started going out without my wig.....when I first shaved my head I thought I wouldn't want to go anywhere without it....now I just can't be bothered and either go bald or wear a a 3 quid straw trilby I got in Aldi.

Londonmumof2
Posted by

 The taxanes will take off your lashes and eyebrows,  but head hair just grows back on people who cold cap with it  A friend who had it rubbed her eye in the shower and rubbed off her eyebrow!

Elsie77
Posted by

wishing you a smooth treatment day today!

My leg hair is still growing too, I was hoping for smooth legs for the summer! Still have my eyebrows and eyelashes, under arm hair has gone and a bit sparse down below but not fully! Cold cap has kept some hair on my head (about 50%), lost a bit underneath and behind my ear which has started to sprout again.

When I asked the nurse about hair loss on Docetaxel she said it thins the hair and is not as harsh as the FEC. We'll see.....

Also, well done on embracing your baldness, I think I would have done in this heat it's been unbearable. 

All the best to those having treatments today x

Northerner
Posted by

Hi

Hope all goes well today with no3 .. half way there ?

Mmm! That feeling of Freda coming up to say hello

Knitted knocker sounds comfy  At the moment no swelling from chemo and surgery swelling has reduced rapidly in the last couple of weeks ,stopped using expander and moved in on strap .

I found a specialist fitter ..no tape ..no talk of size   Inside 25 mins only two bras one slightly too small other perfect fit . No pressiure to buy just sizing including a very accurate statement ( original prior to all this )  of what I would settle at ! 

Her advice to me was take a bra of correct size not swollen put it on only for fit ..and say that is where I want it to be . 

Will let you know if it works

X

love and hugs 
xoxox
Margaret
Blackcat20
Posted by

Hi Londonmumof2,

Just a quick message to say that I am thinking of you today, and keeping my fingers crossed that all is going well with your third EC.   It will be good to have another treatment under your belt - another big step towards the end of treatment.  I hope that the side effects will stay away, or at the very least be minimal and not interfere with your normal life too much.   I am just off to the hospital now to have bloods taken before my second EC planned for tomorrow.  I am still fighting with my new wig this morning, as when I move about it has the tendency to rise up and my fringe disappears up my forehead.  I have spoken to the *wig lady* in our cancer centre and will go in to get some advice from her (although she said that the extreme heat at the moment is making everyone’s wigs slip about, including her own!). She also booked me on a Look Good Feel Better course on 7 October, which is the next one where they have a free place, so I am looking forward to that.

I hope that everyone on the thread is having a good day!

Blackcat xx

ruthie2
Posted by

Hi all, no phone call re bloods taken this morning so I’m taking it as no news is good news as I’ve usually heard by now. Nurse did say I look very well and that the antibiotics had obviously done the job, which I thought strange as I didn’t take them in the end! So will be off for 1st Docetaxel in the morning unless I hear otherwise.

Have taken loadsa steroids in prep for tomorrow & will see how I go. Wasn’t weighed this time either, not that I’m complaining, but is this normal on t? No mention of any injections yet so looks like I’ve dodged that one again!

Going away this Saturday for a week with the whole family, parents, in-laws, all in their 80’s, 4 sons and their partners, grandson and 2 dogs. It’s gonna be full on!  seeing as I’m so well, (their words) both sets of parents decided to come along for a break, which leads me on to-

As I don’t have a chemo book/card or record/anything, should I ask for a meds list or something to take - just in case? Probably won’t need it but if I haven’t got owt.........

I know the side effects are different to ec, so will take painkillers, anything else???

Londonmum hope you got on ok with the last ec, woohoo high five!! Half way there!  Go girl!!!!! Last of the 2hr post ec cold cap too. Makes you want to carry on. 

Fee fingers crossed all the way for you today hun

Blackcat hope your bloods came back good for tomorrow and  everything goes well. I got a pink wig thru the post today, I’m building up a fair collection just in case, tho they gave us all much laughter at the weekend when my 2 6’8” and 2 6’3” sons tried them on!!!

Hope everyone else, there’s too many of you to name and I’d feel dreadful if I forgot some one so this really is for every single one of you and you are either feeling better or continuing to feel better, much love

Dreamthief
Posted by

Hi

Keep yourself in check after your 1st Docetaxel as you get a bit of a honeymoon period with this one - it takes around 3 days to fully get into your system.  You may feel cream crackered over the weekend so try not to plan anything too energetic.

Hope it is kind to you, G n' J

ruthie2
Posted by

Thanks dreamthief, that’s good to know, apart from the drive on Saturday I’ve not a lot planned - the sea kayaking will have to wait!

If I have to have plenty of nana naps then so be it xxx

Holbox123
Posted by

Hi Guys,

Been out of circulation in my ‘bubble’ for a few days, a mixture of feeling sickly, lightheaded and very sorry for myself. I don’t like being ill and struggle to cope with restrictions. So I find the lack of energy a killer. I’m also putting weight on at a rate of knots and after being so proud of a 3 stone weight loss last year I’m fast approaching my starting weight again. I know that the focus needs to be getting well, but I don’t want to be back to where I was for my daughters wedding in February. So I need to get my head in the right place and start eating properly.

I didn’t make work today, still sickly and tired, its taken longer this 2nd EC, I’m hoping to get back to work tomorrow for a couple of days.

Great news about the lingere shop Northener (couldn’t tag you), my operation will be around Christmas time, so I know what to ask Santa for. I hope Dexter has been ok in the heat, Ridley has been wiped out like me.

I hope you are ok today I hope your treatment went well and you are feeling good.

I hope your treatment went ok today - Im thinking a lot about Paxotel too - I start 3/10 weekly for 9 weeks, I worry that the reduced recovery time will be more difficult to cope with, but then I have heard it isnt as harsh.

Hope you are feeling ok following your first EC.

I hope all is well, not the greatest bank holiday in hospital, but you are in the right place to get fixed. Only 2 more chemo to go? I cant wait for that, it all seems such a long way away at the moment.

I can imagine your hair falling out wasnt a great feeling. I got mine shaved before it really started to drop out, but now I have a few shiny bald spots between velvet - that comes out like im molting everytime I scratch my head. Not worn my wig for days, so dreading the furry hat tomorrow as the aircon in the office isnt really much good. My wig is pretty tight, I tried it out in the wind so Im hoping it stays in place.

Eileen xxxxx

It’s going to be a long journey, but I won’t let this beat me, I’m still me xxx
ruthie2
Posted by

Hi , good to hear from you. So sorry to hear about your bubble, my 2nd ec sounds as if it was very similar to how you feel, sorry for myself, depressed I suppose, physically tired too I ended up taking a full week off, whether it was the right thing to do I don’t know as I just seemed to sink deeper into a kind of chemo gloom! 

However it did ease honestly, didn’t happen as bad with no3 but I wonder if its cos I was expecting it? If it happens again I think I may have to get advice. Don’t know about you but I always used to get proper full on pmt blues etc rather than physical symptoms, wonder if it’s linked?!?

i so get the weight piling on! It’s ridiculous!  I crave carbs and all the naughty junk food, salad just isn’t cutting it unless it’s covered in ketchup- I kid you not! Maybe we should start some kind of virtual diet/exercise tips thread?! 

Wishing all the best wishes in the world and loads of big hugs too xxxxx

ps I can now tag yay!!! 

Londonmumof2
Posted by

Not long back from third EC (I have one more sadly, as they give 4 at my hospital...), and feeling meh. After the first 2 my bloods were fine, but this one they are down a lot, and my chemo nurse said to watch out for bruising and infection this time. Can I ask advice from those of you who ended up in hospital? My blood were taken last Friday due to the bank holiday, but I've actually felt worse since then. They are:

Hb- 110g/L (135 1st chemo, 118 2nd chemo)

White blood count 3.4 (7.7 1st chemo, 6.9 2nd chemo)

Platelets 237 (298 1st chemo, 348 2nd chemo after PICC line)

Neuts 1.3 (5.4 1st chemo, 4.6 2nd chemo)

My neuts have really dropped off this time, and do feel really dizzy and tired a lot of the time, with an upset tummy for 4 days now. I imagine that I'll have neutropenia in the next few days and have warned husband and eldest daughter what to do. No idea how it dropped off so quickly this time, but I can see the next couple of weeks being less fun than usual....as visions of Fee's second and third cycles come to mind:(