Hello to everyone! Sorry for the long post. Got out of the shower four weeks ago and noticed in the mirror that I had a HUGE black, black bruise on the side of my right breast. No idea where it came from. I'm sure I would have remembered if someone had knocked me that badly! Felt a lump underneath the bruise. Managed to get a same-day appointment with my GP (usually unheard of). She immediately referred me to the breast unit of my local hospital and got me in the following week. After a mammogram there was the ultrasound to go through. Fully expecting her to say it's just a cyst, I wasn't expecting her to say that it was in TWO places! What? I had to sit and wait to see a consultant who told me that we were probably looking at breast cancer! I'm sorry, can you just repeat that? You know that something is going on when you're shown into a private room and they go and get your husband from the waiting room.
I was assigned my Specialist Breast Care Nurse (who is just lovely). She told me that four of them had looked at my images and, even if the results come back negative, they would ask for another test. That's how sure they were of what we were dealing with.
I was diagnosed two weeks ago - Stage 2 (in both areas) connected by a calcium stream, which they don't know yet whether it's cancerous ER+ HER2- Undergoing my single mastectomy next Tuesday. Apparently they will do more testing to determine what further treatment I require, although my surgeon has said she thinks I will require a "not insignificant amount" of radiotherapy. I am putting off my reconstruction till later - 1. because if I need radiotherapy it could affect the reconstruction, and 2. apparently I'm too f*****g fat! No, my consultant did not call me fat! She just said that as my BMI is over 30 then she wouldn't be happy putting me through a longer operation that absolutely necessary.
After diagnosis I made the mistake of googling everything - huge mistake! I have had two meltdowns (usually on a Tuesday for some reason)! I usually have a fantastic memory but at the minute I have described my brain as an overstuffed bin, and if I try to take in any other information, two other pieces fall out. I can start a sentence and either can't remember a word I want to use, or I forget altogether what I was talking about.
I feel like this has been going on for months but couldn't wrap my head around the fact that I was only diagnosed two weeks ago!
I'm trying to take one step at a time but it's so hard! I find I'm wanting to talk to everyone and anyone who will listen and boring the pants off them in the process. See, I'm rambling again. Sorry, future posts will be shorter - I promise!
I am sorry you have found yourselves in this group, the group none of us wanted to join, however, we are here and what an amazing bunch of people they are or Fruit Loops as we are also know.
You will go though waves and waves of emotions with all this, and you are right to we all. We are at a place that the majority of us have no understanding or back ground and then boom we are rushed onto a roller coaster of a ride when we didn't even know we had a ticket for the ride.
If this helps, I am over 50, only short in height, over weight and DD/G size cup. I suppose a little like a weeble, although, slowly I am 'trying' to 'walk my way to happiness'..... although the walking seems to have disappeared at the moment.
At the start of my story, I was 'get it out, take them both off, all off, so long as its out'.... I think this is a natural reaction for something we have not idea about.
Cutting my story short, I was originally told due to size to be taken out (I think it was roughly 75mm x 75mm x 40mm) that I would be best to have 'therapeutic mammoplasty' ..... I seen pictures of the surgeons work and to be honest, it didn't help me feel any more confident, it scared me, I was expecting to see photos like the ladies that have had cosmetic breast surgery.
I kept all this in my mind, and worked mentally on the bonus of having both boobs reduced and got myself mentally prepared for this......
Then I found out about 'TARGET IORT' this is where you have lumpectomy and radiotherapy combined!! (This surgery is amazing and is now available on the NHS at a limited number of hospitals - thought most doctors still do not tell the patents about this treatment - this is another story and I will continually beat the drum to get this treatment heard of - by law all doctors and consultants should tell a patient of this treatment regardless of whether is its available at their hospital or even if a patient doesn't fit the criteria to have this treatment).
Anyway, I am rambling, so I find out about TARGET IORT and then say about the 'therapeutic mammoplasty' to 'even me up'. My Consultant says this he can see no reason why I would have this done, there is no need - yes my boob will be slightly smaller, over time the body 'fill's in the space. I light heartedly joked about 'having a bust reduction' and he said, if I had wanted this type of surgery I would of had it done years ago.... which is sort of true I suppose, although I would of liked it done, I would never of had the courage - so this was more a 'mentally, I am having a bust reduction rather than what the "real" operation was for.
What a situation I had put myself in, mentally I was prepared for the 'therapeutic mammoplasty' and now being told by a different Consultant (the Consultant that went on to do my surgery) that I really don't need to have such extreme surgery, there was no health benefits.
The area was my left boob, top left - (if you had a pocket on a shirt that is the area). I was thinking if it was the bottom area the weight of the boob would pull down and slowly cover/hide the operation site. I thought at the top this won't fill in.
I went for the lumpectomy (TARGET IORT). I could not believe I had had my treatment, I had what looked like 'two sterria strips' - those funny little strips of plaster. I will be honest, for the first few weeks I would not look at my boob, I didn't want to. Then when I did I hated it, I think this is natural feeling for many of us, mainly because it 'reminds us of what has actually gone on', at the start it was all of a rush, a roller coaster of a ride and then after the operation I think this is when it finally sinks in and we start to grieve the old 'us' and adjust and move forward to understanding and accepting the new us. The operation area is a reminder of it all as time goes on it becomes part of a battle scar and slowly, slowly it all fades.
Little by little, week by week, the area changed 'the dent' slowly started to disappear, 12/14 months on you can hardly see it now. Yes my boob is still slightly smaller than the other, but hey apparently most women have lopsided boobs naturally and if I am honest it really is not that big a deal - especially in the bigger picture.
Here is one thought though, the area I had lymph nodes taken from was, lets say, 'sore' not painful, a stinging type of sore.....The lumpectomy area was not painful at all... I did as I was told, took it easy, didn't over do anything and everything went well. I could not and still can't get over the fact that 'so much was done - without pain' ..... this them made me think hmmm for my own reasons, to have a smaller bust.... should I have had the therapeutic mammoplasty - this is easy for me to ask now, now that I have experienced surgery..... but, I know, I would not have the courage to volunteer to have it done now!
The best thing you can do - is look at all options, how you feel mentally with it all, a little part of me wishes my boobs where smaller, I am just so grateful that it was picked up early and I was blessed to be able to have treatment.
I came here nearly two years ago with the question of what do I do 'lumpectomy or therapeutic mammoplasty' and Mistymoley gave me the best advice.....
I know you are conflicted. I'm going to tell you that the WLE is the one for you. How does that make you feel? Are you now tending towards the mammoplasty?
OK, so I tell you to have the mammoplasty. Wish you were having the WLE? I think sometimes you need to be given no option to realise which option you really want.
If you are fearing recurrence, you need to know that it doesn't matter how much breast tissue you have, it only takes one rogue cell to develop into breast cancer, so that's kinda irrelevant. Also, secondaries can develop in the lungs, brain, bones, all over the place, so that is even more irrelevant.
If your surgeon goes for the WLE, he may find more cancer and decide to take more and you would be quite lopsided. Then your mum would notice, most likely. Or it may be less than expected, and you'd be up and about in no time.
I say go with your gut. Ask your surgeon for your statistics for both. I'm pretty sure they'd be the same. You can use the Predict tool as well, if you want to try your own statistics.
if it helps you to know I had mastectomy last Thursday 8 days after diagnosis .An calcification area of 50mm proved positive . Not much time to take info in and make decision between lumpectomy or mastectomy.
I am 70 no idea what bmi but overweight with a F/G cup .For myself I decided against reconstruction ,but have been offered reduction on good side .A decision that can be confirmed a few months down the road I wasn't offered one at same time .I did make a joke about being lopsided .one thing that was mentioned was My boob was wide , this could make it difficult to match up with permanent prosthetic so wouldn't be balanced.
At the moment I have got a soft temp prosthetic (Freda ) I was able to wear even when dressing just removed . Been In use all day today . Even tho I have a large cup you honestly cannot tell so I would wait til the rollercoaster slows down a bit before you make some of the decisions and just use your energy in the now ! We all have felt /feel the same but this community is such a support . People think I've lost the plot because my weird humour has come out but whatever helps you cope .
Must admit less pain than I thought just take the painkillers . More inclined to think I may have a reduction later.
Well that's my ramble for today
love and hugs
Thanks for replying. Your sons very positive kids have a great ability to ground us to the practical aspects. My heads a mess at the moment. One minute i want to talk but i think if i here another "they can work miracles these days" im going to barf. Im angry on minute and in tears the next. Although i did manage 5 hours today where i didnt burst into tears.
I won't lie to you, your head will be a mess, these are very early days for you. You are thrown in at the deep end. No one truly understands how you feel, they can't, until you actually hear 'those' words people can't know how to feel or understand how we feel.
You will have masses of different emotions and I think a lot of them come because the people around us really don't know how we feel and don't know how to actually help us.
My husband tried to help me, got me to go to the shops the week after I had being diagnosed... I didn't want to go, I go out the motor started walking to the shop and it felt like every step was in slow motion - I wanted to stand still and shout out to everyone 'do you know what is wrong with me'. I had to go back to the car. I had the added worry, I was not going to tell my mum about my diagnosis - I could not worry her and I could not cope with constant (caring) questions asking 'how I am'!!
In fact I haven't told many people (I don't have a large circle of friends - I reckon I have more on here than in the 'real world'! Mentally, I did not want to give 'it' room in my life, and more than anything I didn't not want to be the diagnosis first and me the person second, it this makes sense!!
Fallenangel1, you will change, you will start to move forward, mentally you will, don't get me wrong you will still have out bursts and they will possibly start from the smallest of disagreements - and yes you will feel like throwing things (I actually did a few times - it felt great, but, in reality is so wrong).
Well Done on your 5 hours, you will get through this, once you know what your treatment is going to be, you will start to move forward. In the meantime you will find that you are in a type of grieving processes, the person you was before this has gone - find a way to understand this and work on the new improved you - the you that now won't stand for any sh*té.
Sending love and hugs xxxxx
Owww and look at Mindfulness apps, they really can help with clearing your mind, helping you get to sleep etc. Its funny, I hadn't bothered with these until I had my diagnosis. I used them right up till I had my operation and then I stopped. I will get back onto them, I do think they are good and can help ease worries.
Most of all just know all these different feelings are normal - well normal for what you are going thought.
Think this is a totally normal reaction - you are not alone. Told my best friend that if one more person asked me how I was I would have to punch them in the face! (hilarious when you consider that I am only 4' 11"). I am so tired of massaging other people's egos, the stupid 'how are you today?' comments, who only want to be told that you are doing ok so that they can feel better. A friend told me that they probably don't know what to say and I should just let it go and walk away. Perhaps I will feel that way when I start my chemo and people can actually see how I am without all the stupid encouraging comments - what do they know anyway!
I know at the moment my anger is protecting me in some way from feeling sorry for myself. However you are feeling is perfectly justified and understandable. So cry, rant, just let those feelings out and don't feel guilty about - your family and true friends will understand and anyway this journey is about you not them. Take care lovely.
Thanks Whathappened for talking the time to reply. Still wading through the paper work its like studying for an exam that your life depends on. You have made me feel normal for the first time sice tuesday. Im not very good at playing the waiting game. On the beight side the house has never been so clean.
I don't think that friends and family can realise how it truly feels. I was as work on Thursday for our school Feast Day and quite a few staff have opened up about their cancer battles, which I'd no idea about. One woman with ovarian cancer 18 years ago was given a 40% 5- year survival chance. She had gruelling chemo which caused really bad peripheral neuropathy (at the time she had to cut open the front of her shoes to get them on!), and had therapy for over a year when she was given the all clear. She goes to her local Maggie's Centre even now to show others in her position that there are success stories when the odds look
I've been on the roller coaster for three and a bit months, and in that time times, including the starting acan when I'd put myself six feet under! About to start chemo, so getting ready for the next ride. One diagnosed it's a life- time of it, until medicine moves ther goalposts significantly in our favour.
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