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and if you have room
and some hugs to you TheScriptFan
What is a Community Champion? How to add to you profile Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x
Maggie-Gaudigirl HAPPY BIRTHDAY XXX
Love and hugs Ali xxxxx
You may have to fight a battle more than once to win it
TheScriptFan hope your ok xxxx I'm tired cos can't sleep with steroids but been to work xxxx
Hope all my chemo buddy's are well xxxx
Love and hugs to you all xxxxx
Thanks everyone for the birthday wishes!!!
I’m having a very peaceful day here. The kids have brought me some wonderful pressises and I got a lovely cashmere blanket from the family, which will be nice when it gets cold! Bring on the winter!!
We had a delicious Indian takeaway for lunch, my favourite! And some friends are coming round for tea, I might go out for a walk then, it’s a nice sunny day here.
But generally I’ve spent most of my time sleeping, the kids can’t believe how easily I can fall asleep, the steroids don’t seem to have the effect everyone else seems to be getting!
Thanks again everyone!! I’d invite you alll round if I could!!
Sorry haven't been on for a while.
Had my 2nd FEC 8 days ago and have been so wiped out by it. Thankfully no sickness as they gave me IV anti sickness this time because of how sick I was on 1st.
But fatigue is unbelievable, I never imagined it would be this bad.
Yesterday I was on day 7 and still feel so ill so phoned velindre hospital (which is my cancer hospital) and spoke to sister on treatment line and she got in touch with my GP and got me an appointment.
Turns out I've got a chest infection, so now on antibiotics and steroids.
Hope you are all well everyone.
Love to you all
I'm good thanks ali owl except i have developed twitches in my eyelids, feel like i'm constantly winking
Sorry to hear you've not had it easy Kathryn123 seems a few of us have been wiped out this time, lets hope our next lot will be easier for us all.
Good job we're all tough cookies xx
If its hurting right now, it's gonna make us who we are, it's written in the scars "The Script"
Sorry I haven't posted for a while - I've been working through the Docetaxel and Herceptin side effects from my second treatment. But I have been reading everyone's posts. Here's what the SEs have been for me so far with this cycle - cos I know you're all interested lol. Apart from a red face, the side effects didn't really kick in till day 3 sense of taste, and then day 5 when I felt really weak, fatigued, achy bones and muscles, sore mouth and bowels playing up. By day 6 I felt like I'd also been run over by a bus, with some blood in nose and my lower eye lashes are getting quite thin now. By day 7 I'd developed oral thrush like last time, so started the medication I had ready for that, and mysterious cough and sneezes. Day 8 I realised I had got a cold and I was actually fighting it off, which is amazing because I thought I'd be in A&E if I caught a cold. Day 9 (today), I've shaken off all the SEs except the oral thrush (which is a lot better now), the dodgy bowels, slight blood in nose, and primarily the cold and cough. I spoke to my chemo head nurse today who said its always a difficult call whether to go into hospital or not when you have a cold, but that I should come in to be checked if I get a temperature or feel ill. Last of my 7 white blood cell building injections tonight though yay!
So much going on with everyone
Maggie-Gaudigirl Happy Birthday!!
Bluebell22 congrats on getting to your last chemo, and fingers crossed for easy side effects.
Kathryn123 so sorry to hear you've picked up an infection. Hope you get past that extra hurdle as fast as possible.
Tigermum I hope you're OK? Last time you posted I think you were ill in a caravan a long way from your normal hospital. Worried about you.
couttleberry welcome to the roller coaster! How did the first chemo go?
mama fighter and Helen K - how're you doing now? I hope the vomiting has stopped?
earwig o how's it going so far on the docetaxel?
Semh welcome to you too. I know it's nerve wracking waiting for the chemo and those SEs to start. Good luck for Tuesday.
Karen 234 glad the first taxol went in OK. Fingers crossed for minimal SEs.
ali owl, Leolady56, TheScriptFan, Dizzy17, AnnJac, Jo36 and everyone else I've forgotten hope it's going as well as it can and thankyou for being there
love and hugs
Sorry to hear you’re having a tough time Betty and thanks for asking. Went ok. Had to abandon the cooling cap after 35 mins. Found the headache too awful. Feeling a bit sicky right now and peeing pink like a goodun.
Oh Betty Mango
Ok poop award to you then. I’ll send the badge tomorrow on my phone now so no awards allowed
Yup always one hell of a call when the poop hits. I called my issues in this week ( remember I finished chemo in May ). I got a jolly ride in an ambulance and 5 hrs of tests. Ewww and more meds that give me the trots . Always love that description . Stilllllll - apparently at my regular echocardiogram today, I got a top notch check. 40 mins of jel rubbed over me not 20 mins. Mmmm. Told yes you’ve had pericarditis ( no shhhh Sherlock ) and your heart function is down but not too much.
Breathe ladies breathe . Tomorrow is another day
As Toxophilite would say ‘ cancer the gift that keeps on giving ‘
So bedtime ...
Hugs of a gentle nature to you all. Positive thoughts
Or ffffffffffff this
Have a good weekend everyone. And for those of us on the steroids here's hoping for a smidgen of sleep. It is so hard to cope with this disease when so sleeo deprived. Although menu planning for the week ahead is going quite well . . . .
Thanks for your concern folks. Sore throat was no better today although temp was still normal. But I spoke to my chemo team who told me to go to the James Page Hosp to get some blood work done. Spent 3 hrs there as my temp spiked to 37.7 so they wanted to keep me in. BUT I told them if I had to be in hospital I would rather do it at home. So they gave me a massive antibiotic dose. For some reason my BP then plummeted so I then had to have some saline to try and bring it up enough! Once released we went back to our van, packed up, drove home and I am currently sat in Colchester A&E waiting for a decision on whether they are going to find me a bed! However they are having real issues getting blood out of me!
So a weekend away was cancelled and we will have to wait and see if there's any other knock on effects.
When life gives you rain - play in the puddles.
Sorry to hear that, but much rather you be in hospital safe I left it far too long before I rung and went in will know better next time. Hopefully they’ll have you sorted in no time.
Take care big hugs xxx
Bleep bleep bleep
Your own bed is great but .... sometimes Hotel NHS is better
Leolady56 arrived at A&E at 8.30. Took some bloods but vein blew. Took until 2.20 to get a doctor who finally put canula in foot! I have so many bruises down my arm where they tried! Got to have chest xray. Had another lot of antibiotics. Just waiting to see if they are going to keep me in.
Now I am knackered!
Thanks Betty Mango so far, so good on se's. Think anything would feel better after last weekend and the pain of the blood clot/lung infection! Only thing I'm dreading is the 2 injections into stomach starting Monday for 5 days. I've got my blood thinner ones for the next 6 months and then still got to have my Filsagrim for 5 days.
Tigermum - hope they sorted you at the hospital and you're feeling better.
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