Breast cancer

Affected by breast cancer? Join this group to share experiences and ask questions to people who understand what you're going through.

It seems I'm a patient now!

moomy
Posted by

But not a very patient one! 

I've at least got a diagnosis, it's invasive ductal cancer grade 2, but still small, oestrogen receptive but looks as if I might get away with the lymph nodes....and maybe not too much treatment afterwards? 

Complex plan, but to begin with, a sentinel node (plus another one or so) removal as day surgery, (a nuclear medicine visit first to get 'the jab' for them to trace) then a gap while that,  plus the HER result come back, then because of my previous surgeries for cysts and the fact one resulted in a massive haematoma, therefore scar tissue, I will have a complete mastectomy with an implant. That will be immediately after Easter. 

By finding out as much as possible beforehand, the surgeon hopes to prevent too many operations. Obviously I will then need Tamoxifen or similar, so will appreciate helpful advice about that. 

But I'd be interested on anyone's 'take' on her plan. I feel reassured that she took time with me, and the BC nurse afterwards spent a good while too. 

Hugs xxx

Moomy

moomy
Posted by

Oh, and for anyone who hasn't 'met' me before, I've been around on the site for years as carer to our daughter who had a VERY long illness with Hodgkin's Lymphoma, so I've been hiding away in blood cancers! But was one of the very first round of Community Champions! 

Hugs xxx

Moomy

Leolady56
Posted by

 

Well a very weird welcome for you then but a heartfelt one and you know that the support etc etc is second to none.

So guess that an extra post will help bumped you up the list.

On a totally different path to you but ........

Take care and be gentle with your self. It is now your time to be kind and fix yourself.

Leolady56

 What is a Community Champion? How to add to you profile Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x

moomy
Posted by

Thank you Leolady!

What a warm welcome!

Hugs xxx

Moomy

toxophilite
Posted by

And another welcome from me

Sounds like it's been caught early, so fingers crossed for that. The more tests they do up front the better as far as I'm concerned!! Ask awayif there's anything you need to know, there's usually someone around!! Even in the middle of the night - here - be warned it's 6500 posts long!!

I was a bit further along - grade 3 HER2+ ER0 and 1 lymph node. Had chemo then mx, anc and implant. Now 18 months post dx.

I had all the tests before a treatment plan was decided. CT, bone scan, biopsies............. Was going to have surgery first, then the HER2 came back, and I was in chemo a week later. Literally from GP to chemo was 6 weeks!!

Hug?

xx

Karen 

moomy
Posted by

Thanks, Karen.....

I'm already bone-scan-sorted as I have mild osteoporosis so am already (about 4 years) into Alendronic Acid treatment. 

But I really hope this isn't HER2+ as yes, that assumes I'll need chemo too! Mind you, I do know of the very best antinausea med because of being in the blood cancer side for so long!

Hugs xxx

Moomy

mistymoley
Posted by

I'm sure the treatment will be just right for you, . The thing you will learn is that no two treatments are exactly the same, which is as it should be, because we are all different and the permutations are many and various.

Fingers crossed on the HER2.

Helen

I am not medically qualified, please consult your doctor or undertake your own research.

moomy
Posted by

Thanks, Helen.  

Surgeon seems to think very early April is fine for the mastectomy, I know it feels a while, she did wonder whether they could get me in much earlier, but having booked a few days away in a disabled-friendly converted barn, suitable for hubs, it seemed sad to miss it, and she was adamant they would work round everything to ensure we got the best possible result with as few surgeries as possible! 

Hugs xxx

Moomy

Daisy42
Posted by

Ahh Moomy, stumbled across your post purely by accident as logged into full site and not HL one.   So very very sorry  to read this.  Such a scary time but you’ll be grand I’m sure.   You’ve been a tower of strength to loads of folk going through HL so time to lean a little....take care of yourself.  Big, big hugs, Dxx

toxophilite
Posted by

Hey - I meant nuclear bone scan, not DEXA bone density scan..... They don't normally do that unless node positive though, and they could see the node on my US.

I'm getting Zoledronic Acid for another 2 years, as now menopausal............

I didn't get nausea with chemo, just indigestion and reflux. I was handing back boxes of nausea meds I hadn't used!! Chemo seems to hit weak points, and I've never been a vomiter. But every sports injury I ever had let me know about it!!

You've got this sweetie, and it sounds like they are being thorough!!

xx

Karen 

moomy
Posted by

Awww, Daisy, bless you! 

Yes, our two muscled into clinic with me today, hubs was doing chair-based yoga, his first ever session, and quite enjoyed it but wasn't sure if he would be right at clinic anyway, plus it's a long way from where we could park for his wheelchair! So for our two, it was 'pay back' for me looking after them till almost in their 40's! They've been terrific, so much help and support and then they cooked dinner too! Pay back indeed! 

Hope you're well, and still coping ok? 

Hugs xxx

Moomy

moomy
Posted by

Thanks for all the reassurance, Karen.  Anything and everything is welcome! 

Hugs xxx

Moomy

Daisy42
Posted by

That’s brilliant the family are rallying round....you let yourself be pampered for a bit, you deserve it! 

It sounds as though it’s been found early and NHS are on the case and you’ll be sorted before you’ve had a chance to catch your breath!  
With all that’s going on with you, you’re asking about me!  (what a lovely lady you are xx) I’m doing good, check up next month (now 2 1/2 yrs since treatment finished....) Hope you’re daughter is still doing well also xx
Be kind to yourself now...much love, Dxx

moomy
Posted by

Hi Daisy, 

So happy you’re doing well, wow, 2 1/2 years on! I so remember that long long thread, pity it had to go! 

Yes, she’s doing ok thank you, in spite of catching each and every cold etc going, with a very very low immune system! But is off to play with/for Anton and Erin tomorrow in Liverpool. 

I suspect they were a little fascinated to learn they were treating the Mum of a donor bone marrow survivor! 

Hugs xxx

Moomy

moomy
Posted by

What can I do about the 4am can’t get back to sleep times? 

I know it’s all going to kick off, I know that treatment will start very soon (the sentinel node excision) and that I can have my few days of holiday. I know that the NHS is fantastic when cancer is the diagnosis. I also know that getting myself onto a screen is even worse to keep myself awake, too, so joining in ‘AWAKE...’ is probably not a good idea!

Do I chat to my GP for some sleeping tablets? Maybe some calming tablets? Any ideas? 

Hugs xxx

Moomy