Breast cancer

Affected by breast cancer? Join this group to share experiences and ask questions to people who understand what you're going through.

AWAKE.........

toxophilite
Posted by

Sal - thanks for your honesty and openness! I think you are amazing, in spite of everything you still keep putting one foot in front of the other!! You take as long as you need to grieve. It's not just loss of childbearing. It's loss of the life that might have been. No small thing, and far from easy to learn to live with. In the meanwhile, we are here. We may not understand. We may be insensitive at times. But we care for you as much as I know you do for us.

Karen 

toxophilite
Posted by

Gay - woohoo!! You are very proud, I'm sure!! Please add my congrats to the others from here.

Hugs xx

Karen 

WhatHappened
Posted by

Well Fruit Loops, its a cold, wet night, I've not gone out for a walk, I've eaten lots of sweet things and feel very done.

My heart is heavy thinking of dear Chloecat.

To all our lovely Fruit Loops, I send you my love and hugs, hoping you all have a restful night.

Tonight I am having an early night .... I'm planning on getting to bed by 1:30 latest, we shall see.

Nighty Night Fruit Loops xxxx

WhatHappened
Posted by

Arrrgghhhhhh!!!!

I thought I'd just nip on and let you know..... it didn't happen, it's 1:35 am and I'm not in bed. 

Right, I'm logging off, feeding cats, cup of tea .... hmm not sure - than bed.

Night Fruit Loops xx

LondonLass
Posted by

I only heard the news today, although had suspected for months that sadly Chloecat was not doing well or had sadly passed away! 

I thought it only right that such a Special Lady and Fruit Loop should be remembered on the AWAKE thread. I know some of the newer Fruit Loops might not of spoken to Chloecat or had the great pleasure of meeting her. But.............

WILL NEVER BE FORGOTTEN!

A VERY SPECIAL LADY, WHO WENT ON HER OWN INDIVIDUAL PATH. SEEKING OUT NEW WAYS OF TRYING TO SURVIVE THIS DISEASE. EVEN THROUGH HER DARKEST DAYS SHE HAD A DETERMINATION ABOUT HER. NO ONE WAS EVER GOING TO TELL HER WHAT TO DO,

SOMETIMES SHE MIGHT OF BEEN A LITTLE OUTSPOKEN WITH SOME OF HER VIEWS, HOWEVER SHE MEANT WELL AND ONCE MET, EILEEN WAS NEVER FORGOTTEN.

SAD AS IT IS TO HEAR OF EILEENS PASSING, I AM GRATEFUL THAT SHE HAD CHANCE TO ENJOY SOME TIME WITH HER FAMILY AND THAT NOW SHE IS AT PEACE AND PAIN FREE.

AS I WRITE THIS WITH SADNESS IN MY HEART AT THE LOSS OF A VERY SPECIAL FRUIT LOOP AND FRIEND, I ALSO HAVE A WONDERFUL VISION OF EILEEN IN HEAVEN, WITH HER NAME BADGES IN HAND MAKING SURE EVERYTHING ‘UP THERE’ IS RUNNING SMOOTHLY!

GOODNIGHT SPECIAL LADY, GOD BLESS YOU! YOU TRULY ARE SOMEONE WE WILL NEVER FORGET! Xxxxxxxxx

Lacomtekp
Posted by

Good morning........Lovely tributes for Chloecat. I can remember talking with her back in the day but not recently so I didn't  know her well like some of you. What is reassuring for any one relatively new to bc is the tributes are coming in from people who have been around a while. It means they are still here............

Cloudy start today but it's still dark so perhaps it will improve.

I hope you all have a relaxing weekend. No appointments.....no radiotherapy.....most of you seem to be in the better days of your chemo sequence......cooler weather for body heat control......

I am off to shop soon. Lidl cuts prices on Saturday morning if you're there when it opens.

Then this afternoon we have an invite to a 'posh' bbq. .....a pig roast.....They're employing someone to do it!......Unfortunately it might rain.....we are right on the weather divide drawn by France 2. At my house the forecast is ok and 30° but the bbq is 30km north and its rain.....What to wear....what a dilemma...but oh how nice to be making ordinary decisions again.

Have a good day all. I shall be away from the internet all day......

Love Karen

.

Bustysusy
Posted by

Its always sad to hear that we've lost someone and it makes me very grateful that I've been so lucky . Made me wonder if anyone has any news of Ali Owl? I know she was having more treatment  but that was before Christmas 

MIND OVER MATTER - I don't mind and what you think doesn't matter.
puzzler
Posted by

Wonderful tribute Sal .....sad news. X

grannylara
Posted by

Lovely tribute Sal, (), such sad news, Eileen, (Chloecat) was a lovely lady, as Sal says once met never forgotten. Rest in peace my friend.

Love and hugs Jenny xxx

“ We don’t know how strong we are, until being strong is the only choice we have.” xx

WhatHappened
Posted by

Well ladies, it has been a little quiet in here the past few days - I hope for good reasons, we are getting on with life, getting some sunshine and fresh air and managing to sleep better.

We all know the dark winter nights will be here before we know it, I am guessing this thread will be a little busier.

So Fruit Loops, I am definitely having an early night, I know I have said this many times - tonight I am, I am finishing this post and then I am off to feed the cats, cup of tea and then bed.... last night it was turned 4:00 before I finally went up - so tonight, I am going 1:00 am here I come.

Sending love and hugs to all you lovely ladies, I've left a little lamp on in case any of you drop in during the night, I don't want anyone stumbling or feeling there way around hahaha

Nighty Night Fruit Loops xxxx 

LondonLass
Posted by

Hope you are soon tucked up in bed and sound asleep! 

I managed to reach 5am before I finally settled last night! Although I had been sleeping on and off all day, NOT by choice!

Thanks to the lack of communication between the GP’s Surgery and the Oncologist I am currently STRUGGLING with Drug Withdrawal Symptoms! I think (because I am not a doctor) I have been taken off of the Venlafaxine too quickly! Which would probably of been okay IF I had started on the Fluoxetine that the GP prescribed BUT the Oncologist said not too as there is apparently no evidence to suggest that it helps with hot flushes! So I have not had a Venlafaxine tablet since Tuesday Night and I have never felt so ill in all my life! Hence the reason I haven’t been on here much! 

I am feeling so rough! In fact one decision I have made is that I WON’T be going back on this drug in 6wks as suggested by Oncologist! There is no way I am ever going to put myself through this again! 

Not sure if any of you have experience of coming off a drug like this? If so i’d Love an idea of how long it could go on for?

Just to give you an idea of what the last few days have been like, I have had:

a headache which feels like my head is being squeezed, also a weird fuzzy sensation every so often, palpitations, absolutely no concentration (this post is taking forever), aching all over, Hot Flushes from hell and Sweating day and night, feeling Nauseous all day made worse by eating anything more than a few spoonfuls, acid reflux at night and constipation with stomach cramps!! Oh and not forgetting the low mood and tearfulness!

As I said before I have NEVER felt so ill. 

IF things haven’t improved by Monday morning I will give the GP a call and ask to see someone! If nothing else it will go on record as yet another cock up, because of lack of communication! But I am hoping that they can help with the horrid sickly feeling and maybe the dizziness! 

Anyway it’s taken an hour for me to write that, apologies if there are mistakes and for such a boring post! But it hopefully explains why I haven’t been around quite as much! Still thinking of you all and sending Lots of Love and Hugs! Xxxxx

p,s A huge THANK YOU to Jenny () for helping me through the last few days, I don’t think I would of got through them without your kind words of support and encouragement. You are amazing my friend and I am so VERY grateful. Love You xxxxxx

Lacomtekp
Posted by

Londonlass.....I hope you're asleep now but when you wake up, I don't think you should wait until Monday before calling for some help.

I can't remember the system in the UK for a Sunday but isn't there a weekend locum or night doctor? You shouldn't be feeling so unwell.....there are so many things that withdrawing from your tablets might have done including things like low blood pressure or dehydration.

Unless you feel really well in the morning....call someone.

Cyber hugs. Karen

puzzler
Posted by

When I was at work we never suddenly stopped drugs like venfxine ,we knew to tail it off , 

the side effects of suddenly stopping are exactly what you are saying , constipation cramps , anxiety , nausea , dizziness etc etc all classic signs . Hope someone sorts out what you are going through , you do seem to have to beg for help , and then don’t get it .

have you ever thought about a second opinion from the Marsden ? A fresh look at your complicated history ??  I know someone who  did and got  some good care ........and a trial ! 

Best wishes as always to everyone having a crap weekend 

me x

moomy
Posted by

Hi LondonLass,

Puzzler is so right, drug withdrawal symptoms can be so difficult! After all, when one comes off steroids it’s done very slowly, and coming off antidepressants is done slowly too. 

I seriously think you should get help and advice from at the very least, a nurse/doctor on 111, but preferably a face to face appointment with someone today. 

And the advice to get a second opinion from a specialist at the Royal Marsden is a good one too.

sending lots of gentle cooling hugs xxx

Moomy

LondonLass
Posted by

, just to let you know Ali (Ali owl) is doing well. She’s just awaiting a preventative mastectomy! But otherwise all is good! I mean to reply the other day but head was all over the place! 

Thanks  and  and  for the advice, I shall see how I feel when I get up! Lying down I feel nauseous but otherwise okay (ish) it’s when I move the issues start! I know you are probably right about seeking help today rather than waiting, but i’m A bit scared! I don’t want them to put me back on the drug! Even if that might help, I don’t want to go through all this again......once is more than enough! 

Thanks for the advice and support though, it is much appreciated! 

As for seeking a second opinion. I am going to try the gynae route first! As my Cancer is Stable, it’s the bloody menopausal symptoms from HELL that I’m struggling with! But if gynae can’t help then I will definitely look into it!

Love you amazing Ladies  xxxx