To cold caps or not cold cap

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So I'm due to start EC-T approximately mid to late May. Portacath to be inserted. ECG & ECHO etc still to be done too but they mentioned a cold cap.

Now I've never been a fashionable person or bothered with make up or fussing about my hair, currently less than a inch long. So I'm wondering if it's worth using one?

Any advice?

  • Thanks for the advice!

  • Sorry I don’t understand?

  • I would say to try it.  The first 15 minutes are the worst, especially the first time, but try and stick with it as it gets better.  I had 17 sessions and after the first few sessions, I did not get the headache.  Some people give up too soon, within minutes, before the headache goes.

    I probably lost about half my hair, but no bald patches so it was worthwhile for me. 

  • Hi there, I was reading your reply and wondered if you noticed your hair shedding more with the paclitaxel, I’m about to start that and wondering how the side affects in general are? Is it any easier than first part? Thanks 

  • Hi 

    all you can do is try and see if it works for you . Personally I had really thick hair and after all the pfaffing about, both before and after took a while-

     i didn’t seem to have the cold experience, probably because my hair was insulating me from the cold !! Less than a week after my second session , my hair deserted my in dramatic fashion and I had to resort to a wig very quickly. I’m 18months since the last of my chemo and I’m finally getting my hair back to a decent length and thickness  - it’s a lot thinner on the top than it used to be , but I’m told I now have quantity that normal people have . Still feel self conscious, but baby hairline is finally coming in and eyelashes though sparse are there just about. 

    i’m told its all very individual and you may find it works great for you 

    just try , that’s all you can do

    good luck x 

  • Thank you to all who replied and gave advice. EC-T starts Thursday 15th May so I'll know by Thursday lunchtime... 

    Got my portacath fitting on Tuesday to look forward too first! Oh the joy of getting.... New plumbing put in? Or that's what someone called it. 

    Good luck to anyone & everyone either going through this or caring for someone going through this

    Keep well everyone (and that's a order!) Love & hugs xxx

  • I did not notice the hair loss getting worse with paclitaxel, in fact by the time I started that the hair loss had reduced considerably.

  • Hi

    I was unsure about it but glad I did it, I have had 11 sessions of chemo and have lost about 10% of my hair so it worked for me.

    I take a couple of paracetamol an hour before the cold cap goes on and that helps with the headaches. It’s not the most pleasant of experiences but it is manageable and it’s suppose to help with regrowth, but if you give it a go and it’s not for you then don’t be hard on yourself, you have enough to deal with.

    Good luck with your treatment 

  • So good to hear that the cold cap worked for you. 

  • Sorry, only just seen your post. I've had barely any loss on paclitaxel so far (had 4 of 12 doses so far). In fact, I've started to have some regrowth.

    I've found paclitaxel so much easier; minimal side effects...some tiredness but nothing compared to EC. I've also had hot flushes, slight nosebleeds and a rash, buy all have been manageable.

    Good luck! xx