Had left mastectomy 2020 with x3 nodes removed
no cancer detected in lymph nodes at time so only had tamoxifen as treatment and no radiotherapy or chemo.
been having issues with armpit pretty much since surgery in 2020 and mentioned on numerous occasions but told nothing to worry about.
fast forward to March this year and problems finally looked at only to discover cancer in lymph nodes.
had auxiliary clearance -10 days ago and now waiting on appt early July to find out what’s next.
really anxious that no treatment will be offered again and worried that maybe won’t notice the signs of it returns. How do people deal with the anxiety of waiting and knowing your life and treatment in totally in the hands of someone else. Any tips will be greatly appreciated
Hi. I’m sorry to hear this, I hope you are ok. I know it’s only 5 years but there are a lot more treatments now. Are you still on tamoxifen or had you just come off it? I presume at the time you were deemed low risk and I know that was Covid times and they didn’t want to really give chemo during that time.
What were the issues you had with your arm pit for them to find the cancer in there this time?
I would presume they will offer you chemo or radiotherapy this time. I have a friend who had lymph nodes affected and she had radiotherapy and I had no lymph nodes affected and had to have chemo so you will definitely be offered one of those.
They’ve taken me off tamoxifen until pathology results are back. I’ve just had a lot of pain/discomfort and generally not feeling right in the arm, but found a lump a bout 10weeks ago.
finding the clearance a lot more painful than the mastectomy was, but still early days and need time to let it heal
I had lumpetomy 5 years ago then radio, on 5th mammo it's returned just when I thought I was out of the woods. In answer to dealing with waiting . I work. I knit I read I do gardening and pretty much any thing to keep my mind off of it. I have moments of terror but those are the times I try to distract myself.
I completely sympathise, I found the axillary clearance worse than the mastectomy too, it was awful, I got bad cording, the drain was in longer and I couldn’t straighten my arm.
Never thought it would be worse my drain came out after 8 days but it feels like I’ve bad burns on my arm and very tight and swollen feeling, I am managing to do some exercise but it’s very painful
Trying to do the same but it’s the middle of the night that gets me every time
Keep doing your exercises but if it doesn’t get any better you might need a referral to a physio which helped me massively.
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