Hi I have just joined this forum as was diagnosed 3 mths ago with breast cancer

Hi Shazzi64,

I am on Letrozole also. I didn't have many side effects to begin with but now coming up to 12 weeks and I don't have pain in my joints but have become really stiff. I hope it eases.

Good luck with other meds I have been on any but I have read posts on here from others who may respond to you soon.

Good luck with your recovery xx

Totally with you on that one.

 Where do you get your aches and pains mainly?

 Mine are in my shoulders, arms and wrist and fingers

Mostly my hands back and knees. I'm really stiff in the mornings it's my ankles and feet. As the day wears on its my back and hips. My fingers are constantly stiff.

I use effervescent paracetamol which gives some relief. I will put up with the side effects for a bit longer  and hopefully they settle. I'm too scared the cancer will return if I don't take them xx

I was on letrozole for a few months. Side effects were painful joints and stiffness plus some minor hair loss and very dry skin. I’m now on Exemestane and have similar problems. 

Exercise helps with the stiffness. 

It’s difficult to say whether those effects and the hot/cold sweats are from the drugs or the menopause/coming off HRT. 

Hi my pain is in shoulders knees hips wrists fingers . Basically everywhere ,just so painful . I’m off them now but it will take few weeks for it to leave my system . 

Many thanks . 

My pains were in my knees , hips , shoulders wrists . I’ve come off it on 19th Dec I’m ok now with the aches but still getting hot flushes . 

I have been on Letrozole for over a year and don't have any problems now. I have also been taking abemaciclib since November last year but came off it in December when I went into Atrial Fibrillation  after having an intravenous injection of radiation for a bone scan, I have persistent AF and had a cardioversion in 2023. Last year I had a mastectomy and axillary clearance and 8 out of 9 lymph nodes were cancerous. I am nearly 77 so decided not to have chemotherapy just the hormone targeted therapy. I also had 15 sessions of radiotherapy which left me with a bad burn and damage to my lung. My problem now is whether to go back on the abemaciclib  or not, I have an appointment on Tuesday and have to make up my mind by then. I do get achy joints but have put that down to my age as all the MRI's and CT scans have just shown age related deterioration.