Brain tumours

A place for people affected by brain tumours or brain cancer to support one another, ask questions, and share their experiences.

Son newly diagnosed

Leglessghirl69
Posted by

My son (31) was admitted to hospital 3 weeks ago after optician found an issue. He had had “migraines” for 2 months numerous trips to gp ,out of hours & hospital all said migraines then optician sent him straight to a&e to be told brain tumour a week later we got the devastating news it was malignant & had spread to his spine he’s now getting op number 5 as his shunt constantly has problems & had a massive seizure today.  We have been told it’s a rare tumour & more testing needed done but still don’t know next steps regarding treatments   We also have been told it flagged up on a scan a few years ago but wasn’t followed up which is frustrating 

Madesp
Posted by

Hi Leglessghirl69

Your story very similar to mine. Please read my profile. I'm here to help if I can. 

My son was 34 when diagnosed last year. 

Mad 
Leglessghirl69
Posted by

Been told today that op last night removed shunt mechanism but let tubes as fluid is too think & causes issues now looking at palliative care & if he can build up & get strong enough they will look at chemotherapy etc but for now not looking good they have said hope for the best but prepare for worst 

Madesp
Posted by

So sorry really sorry to hear this. Hang on there and hope your son gathers the strength. The doctors will tell you the worst. This is a nasty disease that ravages our loved ones but please never give up hope. X

Mad 
Leglessghirl69
Posted by

Well he’s been in hospice 2 weeks & has done well but he’s not likely to get home & we won’t have long obviously we don’t know for certain but he’s deteriorating a little we are broken hearted but staying strong for him