Glioblastoma multiforme (GBM) is a type of brain tumour. If you're suffering from...
Low-grade (grade 1 or 2) brain tumours are slow-growing and less likely to spread...
Secondary brain cancer is cancer that has spread to the brain from a primary cancer...
In a few weeks I will be starting radiotherapy for a brain tumour 10 mins a day for 6 weeks. (I have just completed a five-day course of chemotherapy which knocked me out a bit.)
I wondered if any had any advice for this particular type of radiotherapy? I know it could tired me out as time goes on, but what will the main ill effects be compared to other types of cancer? The tumour is right in the centre on my brain.
Thanks for any tips or advice, take care everyone,
Hi, is this whole brain radiotherapy? If so, Ginajsy in the Brain, secondary tumours has had it.
If not, apologies for tagging u Ginajsy
I hope your radiotherapy goes well.
No worries Buttercup, I think this type of radiotherapy must be different to the full brain radiotherapy. I had a much shorter course of 5 days and I believe it was quite strong.
For me I found the one I had extremely tiring and it caused some swelling. Within hours I was throwing up and had to be admitted to get it to settle down again. I lost all my hair and it did take some weeks for my appetite to return and my energy.
This sounds like a much more steady course and over a longer period of time, so I am hoping the side effects are more gentle.
Good luck for your treatment.
There are no perfect people, only perfect intentions
Thanks for your good wishes both. The treatment I am doing is short 5-10 minutes doses for 6 weeks, so I think the effects probably are gentler, but will build up eventually. I read that the worse part can actually be the two weeks after the treatment finishes due to cumulative effect.
Also might be some chemotherapy going on at same time, which might be tough.
I am finding sleeping difficult, I think due to the dexamethasone. I am not taking sleeping pills, but wonder if I should look into this as I think getting some quality sleep is important!
Thanks again, Visgraat
Can u take the dexamethasone with breakfast? That's what I do with mine. Altho I'm only on 0.5mg/ day I'm sure it would keep me awake otherwise
Yes, I have it with breakfast, but then take more at lunchtime. I have slept a bit better over last two days and I think the more exercise I do, the better I sleep. Think is as I get weaker, harder to exercise.
So really I'm just trying to take as much opportunity as possible to do physical exercise - garden, trips to local shop and some home exercise. But a bit worried that this will get harder when I start the radiotherapy - let's see.
Hope your feeling as good as possible.
I was taking a weeks course of dexamethasone, and it left me wide awake at night, once I had finished taking them, a few days later I was able to sleep again!! Which was such a relief especially after brain surgery. But perhaps your gp might be able to offer advice.
I have just started my radiotherapy for my brain tumour, it's a 6 week course, I'm on day 4 and I'm doing ok, slightly tired as I'm also taking chemo and I have a baby.
It's all so surreal but you'll find the strength to face it.
I think resting is important right now but at the same time, keeping active and fresh air, even just 10 minutes, can help too.
It's the unknown that's so scary.
All I can say, is good luck and listen to your instincts.
Best of luck to you and everyone facing this battle x
Agree with your comments, sunshine dreams. Since starting radio every day, have definitely found that having a sleep in the late afternoon for just an hour or two really helps in terms of overall sleep and feeling rested. I then sleep again from say 10:30pm to 3:00am and then can sometimes even get another hour in before I get up at 6:30am. I do watch some TV at 3:00am, but go back to a silent, dark room at 4:30am. I am finding getting sleep to be the main thing in terms of my health and speaking to my cancer nurse today, she agreed I could drop my dexamethasone by 1mg and gradually try to reduce that without affecting its effect.
Totally agree with doing everything to keep active and have found that due to all the rain at the moment, even doing arm and leg lifting exercises in the front room helps - anything to keep those muscles moving!
Looking forward to my box set of Yes Minister to arrive... Take care everyone! visgraat
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