Brain tumours

A place for people affected by brain tumours or brain cancer to support one another, ask questions, and share their experiences.

Inoperable Meningioma - Fractionated Radiotherapy Suggested

Corkie
Posted by

Hi, I'm 49 female and was diagnosed with meningioma brain tumour end of November,  I got an MRI, seen neurologist and neurosurgeon and told I had been accepted for gamma ray knife treatment in Leeds as we don't have that facility in Northern Ireland. I have been so positive and ready to take this on, just a week before we were due to go they have informed me a mistake had been made and I can't have the gamma knife treatment as too risky and could blind me. I am absoluteley devestated

My tumour is 2.5cm and located in the petrous which is a high risk location for surgical removal. My only option now is fractionated radiotherapy for 6 weeks x 5 days a week. I'm desperate to find out if anyone has had this radiotherapy treatment and was it a success, I have been told the radiotherapy is to stop growth of tumour but scared if it doesn't work will this be classed as terminal.  Any information on this would really be appreciated as I am feeling very lost and scared about my future

Thank you 

latchbrook
Posted by

Hi and a very warm welcome to the online community

Although I have not had a meningioma I can understand why you'd be devastated when you discovered an operation you had planned for would not now be going ahead.

I have looked on the Macmillan website for you and found this information on treating meningioma with radiotherapy. You could also post your question in ask about radiotherapy and radiographer Kate will try to respond within 2 working days.

Wishing you all the best

x

 "Never regret a day in your life, good days give you happiness, bad days give you experience"

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Corkie
Posted by

Thank you, I will do that.