Brain tumours

For people affected by brain tumours or brain cancer to get together, ask questions, share experiences and support each other

So scared!

Whits85
Posted by

I was rushed to hospital at the end of January after having a seizure. Was in critical care for two days where I was being monitored constantly. Had various scans and tests done and the staff believed that I had had a stroke as they had found a lesion on my brain.

After I had come round in ICU they had done a number of assessments on me to see how the stroke had effected me.  Things weren't adding up because I was passing all the tests.  So they decided to do an MRI and it turns out that I hadn't had a stroke.  In fact it was a brain tumour on my right frontal lobe.


I'm going into hospital in march to have surgery.  I am so scared.


Is anyone else in a similar boat? 


Thanks x 

Carolyn28
Posted by

hi  

Welcome to the online community

sorry you find yourself here and I'm really sorry that you're so scared.

a cancer diagnosis is pretty shocking and brain tumours even more so.

I had a quick look and there may be a couple of people who I can try and tag although I can't make any promises they're still active on the site, some people post once, get the answers they were looking for and go away and get on with things.

let's try   and   they could be in a similar age range to you, will that help?

there's also another lady who has posted just now but it's about her husband rather than herself

big hugs

Carolyn

xx

Whits85
Posted by

Hi Carolyn,

Thanks for getting back to me. Yes that would be great! And ye I'm 31. I have got an amazing family who are being so supportive, but I know they are finding it really difficult.


I've got a 15 month old daughter and she is keeping me going.  I know I can get through all this, just got a long road ahead of me to get through but just going to take it day by day at the mo.


Really appreciate you replying, so thanks X

Carolyn28
Posted by

no problem

have they discussed what your treatment plan might be beyond surgery, they don't always, surgery is still the most effective treatment for most cancers.

and yes, I imagine your 15 month old will keep you busy !  my daughter was so funny at that age, she used to get cross with me for leaving the stair gate open.

hugs

xxx

Carolyn

Whits85
Posted by

It all looks very positive at the mo. My neurosurgeon says from looking at the scan it looks like a low grade glioma (grade 2 maybe going on 3). Their plan is to remove as much as possible if not all.  Not sure what the plan is after surgery.  

Ah children are so funny aren't they!  My daughter is a little monkey, constantly on the move lol


X

Braveson
Posted by

Hello Whits85, exactly what you describe happened to my son in 2003 and 2009, and again in 2015. The operations to remove as much as possible were successful, and he got his driving licence back after a year' seizure free the first two times. The first time, his wonderful wife was pregnant with their fourth child, and now he's nearly 13 and Dad still around. However this third time the malignancy needed a year's aggressive RT and CT and he has been very poorly after all that for six months recovering from the side effects. But 18 months since the operation he's back at work most days now and eating almost normally again, though very tired and feeling the cold. He hopes for his licence back in November, and is planning to watch The Ashes in Australia next winter. He is brave and a terrific fighter, for his wife and children and parents who live him so much, and so must you be. He has made us all get on with our own lives as well, and accepts no pity, just assistance as and when needed.

All the family and many friends have rallied for the past 14 years with childcare and lifts and comforting; it is a way of life now, and all the Christmases and birthdays and Mothering and Fathering Sundays are well and truly celebrated.  But that is the point: it is life, it is all our lives. Involve everyone who loves you, they will want and need to help you with anything they can, and you will get through each operation and the aftermath and watch that lovely little girl grow up. It will be hard and horrible but there will be light at the end of each tunnel. Just get as far and as fast as you can on with your life when you aren't feeling ill.

I wish you the best and I wish I could hold you tight and help you to be brave.

Good luck

Braveson

mistymoley
Posted by

 

I am sorry you find yourself here, but it does sound as though they have caught it early and you have a great mental attitude which will take you a long way. 

My experience is with breast cancer, so I can't help with brain cancer except to say that my husband works with someone who has an inoperable tumour, he has tablets but leads an otherwise normal life. 

Good luck with the operation and do keep posting. 

Michael admin
Posted by

Hi  and a warm welcome to the community. I'm glad you've found us.

Just a couple of things to add - especially as your post is called 'So scared'.

We've got lots of information about brain tumours here on the Macmillan site - and there are pages on what to expect and how to cope.

There's lots of help and support available here from the lovely people on the Online Community - and you can also chat to one of our nurse specialists on the Macmillan Support Line  - the number is 0808 808 0000 (mon-fri, 9am-8pm) - they can talk you through what to expect from treatment and help you with both practical and emotional issues. 
I hope that this is useful - and please keep us updated with how you're getting on.
Kind regards,
Michael.

prettyfedup
Posted by

I have a GBM4 so i know what you're going thro'. My advice would be don't read google, its all doom and gloom I am 2 years post debulking. I had a nightmare time to start with but feel ok at the min.

Have a look at my 'story' on my profile and try and stay positive, its not the end its the beginning 

Good luck

Whits85
Posted by

Hi,

Thanks for your reply.  I had a look at your story and looks like you've had an awful time.  But you seem like a very strong positive person! 


I try not to read things on google because you are right, it's all very depressing.


I'm being admitted to hospital this coming Wednesday, so will be having my op on Thursday!!   


Hope you are doing ok and thank you so much for getting back to me.

X

Carolyn28
Posted by

hi   

we're keeping everything crossed for you, please let us know how it goes, give us a thumbs up on Friday

: )

Carolyn

xxx

prettyfedup
Posted by

Good luck for the debulkig/biopsy , I felt fine afterwards and home the day after.op  Dont waste time worrying xxx

Carolyn28
Posted by

hey   how did it go ???

hugs

Carolyn

xxx