Brain tumours

A place for people affected by brain tumours or brain cancer to support one another, ask questions, and share their experiences.

Ependymoma grade 3

lou1979
Posted by

Hey....

My dad was recently diagnosed with a ependymoma grade 3. He has had two ops that has removed 98/99%. He is now fortunate that he has regained enough strength and weight to have 6 weeks of radiotherapy. 

The oncologist has said that they will know more early next year after radiotherapy and his first scan results.

I am just looking for anyone who can chat about similar experiences. Brain cancer is a unknown- lung cancer in all too familiar with, having lost my mum, brother and auntie in 2013/2014 respectively. 

Any input would be most welcome. 

Billie_C
Posted by

Hello

I am in the same position as I have just been diagnosed with Stage 3, however I'm unsure as to what the tumour is specifically. I start radiotherapy and chemotherapy in the next couple of weeks as I meet up with the nurse on Tuesday to give me more info. Stay strong, I know I'm trying to aswell. I know it's scary but I'm determined to beat the stats. 


lou1979
Posted by

Hiya, 

Thank you for replying to my post. 

I am sorry to hear about your diagnosis. 

My dad has been pretty positive in himself so that's helping us all. I hope your meeting with the nurse goes as well as can be. I will be thinking of you. 

Billie_C
Posted by

Hi,

Thanks very much, I hope everything goes well with you. Keep posing if it's helps with updates. 



lou1979
Posted by

Hey, 

I've been thinking of you. How did yesterday go? X

Billie_C
Posted by

Hey, 

It went ok, they just took me through the plan for my radiotherapy and chemotherapy. I've got another appointment on Monday to get the mask fixed that I'd need for the radiotherapy, and then I'll wait another 2 weeks before the radiotherapy starts. Then after that I'll be taking the tablets for chemotherapy. I hope it all goes well. 

MacMMM
Posted by

Hello

Having had ops to remove my Ependymoma (grade 3) that they removed all they could see and having completed my 6 weeks of radiotherapy if you have any questions let me know.  Radiotherapy sounds scary and for 6 weeks sounds like a long time but once into a routine its not that bad.  The days can be quite long getting to the hospital (hospital transport is not great in my area).  The affects like tiredness, hair loss etc kicked in more for me closer to the end of the Radiotherapy.  

Regards