Hi - my husband had a tumour removed just before first lockdown last year - only found as he lost his periferal vision. Had radiotherapy and tablet chemo. Unfortunately tumour grew back this year. He had the bulk of this removed on 29th July. Although the op went as expected he is still in hospital as he has lost movement in his left leg and arm.. we don’t know if this will return but waiting for a place at rehab to try and gain some muscle back. I am so frustrated at the waiting as the longer he waits the move movement he loses. He is getting more depressed each day and it’s so hard to see him like this as it is so out of character. Can only visit for an hour a day which I know is down to Covid situation but still it’s hard to deal with.
Hi Cocktail Queen, so sorry to hear about your husband. It's so hard to see our partners go through this journey. My own husband received a terminal diagnosis almost a year ago after they found a tumour the size of a golf ball ( a GBM4) that impacted his speech, communication and understanding. He underwent surgery and six weeks of chemo/radiotherapy then declined any other treatment. His last scan showed fresh tumour growth. Frustrating doesn't begin to cover it! As Mr Autopilot says there's no rhyme nor reason as to why some folk get to take someone to appts and others don't. When my other half had his surgery it was zero visiting at the hospital - that was so hard and scary too.
I don't have any words of wisdom here but I'd encourage you to voice your concerns to his medical team.
Hang in there. Stay strong. You're doing a great job so please take time to look after yourself too. Me time isn't selfish, its essential.
love n hugs
Wee Me xx
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