I am currently just starting a 12 week isolated period due to being high risk as still receiving chemotherapy oh and my 3rd nipple (Ileostomy). In a previous discussion regarding Coronavirus and work it was suggested by Court maybe we could start a thread to help others during this stressful and lonely time. If either self isolating or dealing with a diagnosis of covid 19 or anything else at all. I am more than happy to use my 12 weeks in quarentine as such to try and help in anyway possible. Please please any suggestions or ideas where we can help eachother in any way shape or form.
Thanks for setting this up .
WWW.gov.uk has a definition of social distancing as I was really unsure if I could visit my mum.
Looking into activities and how to exercise from home , depending on your ability level .( I shall come back with that aspect)
Also the helpline 0808 808 0000 can give advise on financial matters and gives grants on an application bases. Maybe sharing this sort of thing would be good .
Anything that eases this uncertain period .
What are your thoughts about self isolation for a person who has had cancer six years ago and has been discharged by the hospital. I
I have left a message with my GP's secretary but haven't had a call back yet as probably they are too busy to deal with a non urgent case.
My job entails sitting next to a different person on an hourly one to one basis and although I haven't stopped work because I like all of us need a weekly wage to live off . I am not sure whether its actually sensible to continue working?
I am happy the Government are offering grants/loans to small businesses and I will certainly be applying for this.
I feel fine at the moment (no coughs/sneezes/temperature) but after seeing the news about Idris Elba who caught the virus without any symptoms, who knows, I and probably others have got it already even though there are no symptoms yet.
By the way to all those who are going through cancer now, please don't despair. I had my diagnosis in 2012, and then a secondary cancer in 2014 and I am still here. Best wishes to all of you!
Great to see you popping on . Delighted you are doing so well . How is your family ? Still musical ? My mum is still doing fine too . Glad you gave people encouragement at such a difficult time . I remember them wheeling a lady into the next room as to my mum who had swine flu and she had an emergency admission. It was so different to this .
WWW.Gov. Uk has a section on social isolation and who is classed as vulnerable in the Governments eyes . It states if you are called for the flu injection they regard you as vulnerable. But they go into a big list of conditions . Worth a read .
If anyone has information on Government grants please upload it . The more information the better .
Take care . Court
Did you find the information regarding visiting your mum? . I saw the BBC news update yesterday re the at risk groups and anyone undergoing chemo is in the group who now need to self isolate. I don't think I will be able to visit my parents now this weekend, which is a shame as I haven't seen them since Christmas and not since I have started chemo . They are elderly and at risk group also.
It is so difficult for them aswell.
I called up the chemo nurse yesterday to see if the apts were going ahead as planned and she said my next Dr's apt will be via a phone call and she couldn't say anything about the chemotherapy at this time. Quite scary.
Take care of yourself,
Hopefully we can get a lot of information out there to help people make informed decisions on the current situation. Here is a link to ACAS regards there stance/advice on Workplace advice for employees and employers.
Oh that’s so disappointing for both you and your parents . I thought initially I would have to drop the food at the door but at the bottom of the document it gave guidance on causal carers which is probably more of a fit . I think as long as I wash my hands on entering I can go in do what needs to be done , keep my distance and leave quickly . I have put in sanitizers and I will use paper towels after washing my hands . I won’t go near if I get symptoms .
Are your parents getting food delivered ? I thought if I keep doing it for my parents it’s one off the delivery list at least ! My dad has a stroke so it will be extra pressure on my mum . But they have accepted it is for the greater good .
It is continually shocking me with today’s updates . Surely chemo is a priority !! In our area I think they are shifting things around currently to get cancer patients treated well away from the frontline . But our cancer hospital is a stand alone unit so it’s possibly easier to do . But I have heard a lot of discussion on how best to achieve this but all from the point of view of continuing service delivery to a priority group .
Is this your second chemo ?
I am finding I think I have got up to speed and the information changes.
Stay well ,
I also meant to ask do your parents have any local support . I thought this might also be a concern . How do you highlight people who need help and where do you get it from ? Does anyone know ! Maybe social services ? I think a lot of people going through chemo and now in social isolation will still be supporting other family members , parents etc .
I hope your parents have a support network to call on . Take care ,
I'm currently on chemotherapy and have not been told to isolate at the moment The NHS site said they will be contacting the vulnerable on Monday and will follow what they tell me , but at the moment my husband is over the 70 age limit , we have to go out to the shops as there are no slots online . I live in London and it's crazy in the shops etc a women yesterday pushed me out of the way to get some soap!! Weve hardly been able to get some food which is difficult as im on a resricted diet .I hear tommorrow they are opening Sainsbury's for the first hour for the elderly and vulnerable which in my view is about time as I have found people behaviour disgusting .
I called Coleplast stoma supplies and they have a reassuring message that they have enough supplies and are delivering as normal and to just make your normal orders I was getting quite anxious about the stoma yesterday!!
I don't feel at the moment the guidelines for us are clear enough very confusing !! Feeling more isolated in my head with the cancer
Lots of love take care everybody
They are managing at the moment. They live in a smallish Village so usually keep a stock of food in the freezer and are still going shopping just keeping their distance, they also have a good network of friends to help out if needed, but it isn't easy as they are 1 and a half hours drive away from myself and my 2 sisters.
They also have a dog to walk twice daily. I know the information re the virus is quite scary and the panic buying in my local Aldi's beyond belief.
Hope your mum is getting on OK.
The BBC news last night listed chemotherapy patients as being in the at risk category due to our lowered immune system. That was the first time I saw it mentioned so I will be self isolating within reason. Yes I agree with you about the crazy shoppers who panic buy, leaving nothing for the poor elderly and vulnerable. Good to hear your stoma supplies won't be affected. You really don't need to be worried about that.
Stay safe and well,
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2020
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: 668265007