I am currently just starting a 12 week isolated period due to being high risk as still receiving chemotherapy oh and my 3rd nipple (Ileostomy). In a previous discussion regarding Coronavirus and work it was suggested by Court maybe we could start a thread to help others during this stressful and lonely time. If either self isolating or dealing with a diagnosis of covid 19 or anything else at all. I am more than happy to use my 12 weeks in quarentine as such to try and help in anyway possible. Please please any suggestions or ideas where we can help eachother in any way shape or form.
Thanks for setting this up .
WWW.gov.uk has a definition of social distancing as I was really unsure if I could visit my mum.
Looking into activities and how to exercise from home , depending on your ability level .( I shall come back with that aspect)
Also the helpline 0808 808 0000 can give advise on financial matters and gives grants on an application bases. Maybe sharing this sort of thing would be good .
Anything that eases this uncertain period .
What are your thoughts about self isolation for a person who has had cancer six years ago and has been discharged by the hospital. I
I have left a message with my GP's secretary but haven't had a call back yet as probably they are too busy to deal with a non urgent case.
My job entails sitting next to a different person on an hourly one to one basis and although I haven't stopped work because I like all of us need a weekly wage to live off . I am not sure whether its actually sensible to continue working?
I am happy the Government are offering grants/loans to small businesses and I will certainly be applying for this.
I feel fine at the moment (no coughs/sneezes/temperature) but after seeing the news about Idris Elba who caught the virus without any symptoms, who knows, I and probably others have got it already even though there are no symptoms yet.
By the way to all those who are going through cancer now, please don't despair. I had my diagnosis in 2012, and then a secondary cancer in 2014 and I am still here. Best wishes to all of you!
Great to see you popping on . Delighted you are doing so well . How is your family ? Still musical ? My mum is still doing fine too . Glad you gave people encouragement at such a difficult time . I remember them wheeling a lady into the next room as to my mum who had swine flu and she had an emergency admission. It was so different to this .
WWW.Gov. Uk has a section on social isolation and who is classed as vulnerable in the Governments eyes . It states if you are called for the flu injection they regard you as vulnerable. But they go into a big list of conditions . Worth a read .
If anyone has information on Government grants please upload it . The more information the better .
Take care . Court
Did you find the information regarding visiting your mum? . I saw the BBC news update yesterday re the at risk groups and anyone undergoing chemo is in the group who now need to self isolate. I don't think I will be able to visit my parents now this weekend, which is a shame as I haven't seen them since Christmas and not since I have started chemo . They are elderly and at risk group also.
It is so difficult for them aswell.
I called up the chemo nurse yesterday to see if the apts were going ahead as planned and she said my next Dr's apt will be via a phone call and she couldn't say anything about the chemotherapy at this time. Quite scary.
Take care of yourself,
Hopefully we can get a lot of information out there to help people make informed decisions on the current situation. Here is a link to ACAS regards there stance/advice on Workplace advice for employees and employers.
Oh that’s so disappointing for both you and your parents . I thought initially I would have to drop the food at the door but at the bottom of the document it gave guidance on causal carers which is probably more of a fit . I think as long as I wash my hands on entering I can go in do what needs to be done , keep my distance and leave quickly . I have put in sanitizers and I will use paper towels after washing my hands . I won’t go near if I get symptoms .
Are your parents getting food delivered ? I thought if I keep doing it for my parents it’s one off the delivery list at least ! My dad has a stroke so it will be extra pressure on my mum . But they have accepted it is for the greater good .
It is continually shocking me with today’s updates . Surely chemo is a priority !! In our area I think they are shifting things around currently to get cancer patients treated well away from the frontline . But our cancer hospital is a stand alone unit so it’s possibly easier to do . But I have heard a lot of discussion on how best to achieve this but all from the point of view of continuing service delivery to a priority group .
Is this your second chemo ?
I am finding I think I have got up to speed and the information changes.
Stay well ,
I also meant to ask do your parents have any local support . I thought this might also be a concern . How do you highlight people who need help and where do you get it from ? Does anyone know ! Maybe social services ? I think a lot of people going through chemo and now in social isolation will still be supporting other family members , parents etc .
I hope your parents have a support network to call on . Take care ,
I'm currently on chemotherapy and have not been told to isolate at the moment The NHS site said they will be contacting the vulnerable on Monday and will follow what they tell me , but at the moment my husband is over the 70 age limit , we have to go out to the shops as there are no slots online . I live in London and it's crazy in the shops etc a women yesterday pushed me out of the way to get some soap!! Weve hardly been able to get some food which is difficult as im on a resricted diet .I hear tommorrow they are opening Sainsbury's for the first hour for the elderly and vulnerable which in my view is about time as I have found people behaviour disgusting .
I called Coleplast stoma supplies and they have a reassuring message that they have enough supplies and are delivering as normal and to just make your normal orders I was getting quite anxious about the stoma yesterday!!
I don't feel at the moment the guidelines for us are clear enough very confusing !! Feeling more isolated in my head with the cancer
Lots of love take care everybody
They are managing at the moment. They live in a smallish Village so usually keep a stock of food in the freezer and are still going shopping just keeping their distance, they also have a good network of friends to help out if needed, but it isn't easy as they are 1 and a half hours drive away from myself and my 2 sisters.
They also have a dog to walk twice daily. I know the information re the virus is quite scary and the panic buying in my local Aldi's beyond belief.
Hope your mum is getting on OK.
The BBC news last night listed chemotherapy patients as being in the at risk category due to our lowered immune system. That was the first time I saw it mentioned so I will be self isolating within reason. Yes I agree with you about the crazy shoppers who panic buy, leaving nothing for the poor elderly and vulnerable. Good to hear your stoma supplies won't be affected. You really don't need to be worried about that.
Stay safe and well,
I also have a Ileostomy stoma and have also been told by coloplast I should be ok for supplies. Regards self isolating my SEO on my command my big boss on the command as per the dwp guidelines has advised me not to come in. I have spoken to my chemotherapy team today and my chemotherapy is still on Friday but no-one can accompany me in there. Also as it stands my oncologist appointment I have on Monday is still on the hospital is closed for visitors hence the chemotherapy team only letting in myself.
I am so pleased to see some of the supermarkets doing that as the greedy just wont hold back . I heard some Lidl shops were doing the same . We have a local restaurant delivering soup to isolated people . Locally some people are offering to get shopping . It helps to hear that . My mum was touched to get an offer . Not that she will probably need it but it so encouraged her .
I also got an email from Waitrose saying they were restricting items but are happy to deliver to people’s doors if they are self isolating .
Not sure about my son’s strategy though . He rented me a movie from Amazon . Contagious. Oh my the current world is shaped on that movie so went to bed shaking. Then today cabin fever is setting in and he reconnected with his childhood recorder . What a din !
I think London is five days ahead of us up here . It sounds rough . I hope you have some food in and stay a home for a bit . I heard a mum with an autistic son with a limited diet had pleaded with people to think of others with restricted diets .
Our schools are officially out on Friday and looking at online classrooms .
Yes think we will have to self isolate soon at the moment I'm only walking to park and walking away from everybody else . We only live in a small flat so is going to be hard. It's difficult with the shopping because I drive there and hubby goes in making me stay in the car but I worry about him because he's 20 years older in the at risk group and is recovering from cancer although not on chemo. He thinks im more at risk though . If things weren't hard enough before this started. We are all in the same boat with this and just have to do our best to stay safe
Lots of love
Yes we just have to stay safe and be careful who we see. Just feel so sad for the poor pupils who are not able to sit their exams in May and June and the parents having to organise child care and support .
Unfortunately we are not going to be able to visit my parents now who are both in their 80s so at risk group. Where they live in Suffolk a lot of second home owners have come up from London so that is a worry.
I haven't been out of my flat for 2 days but going to brave the shops now as I have no fresh vegetables.
Hope you all stay safe and well,
I am going to do some painting later on to take my mind off the situation .
Oh Court what was your son thinking of to rent you that movie!! I think you should take his recorder away from him.
I thought we had to stay put so we don’t take our germs to new places !! Lots of people here just dismissing the advise . Hope you managed to get some food . Think my mum is maybe regarding me as a risk factor . Dropped in some food and she had a cover over her mouth ! Perhaps leave it at the door for a few weeks ! Think she is a bit scared .
Sun is out here so that positive.
Are we going to get to see your artwork . Quite ease to load photos! take care ,
Tesco announced that they were opening for the elderly and vulnerable at 9am to 10am when we called yesterday they told us yes this is true and it opens at 9am , well today we got there at 8.30 and e store had already been opened at 7am for everybody. The locusts had already stripped the shelves !!! There were hoards of people in there absolutely shocking we were under the impression that it wld be a safe environment before anyone else used the store. My blood was boiling I was so angry . The only thing they were doing was letting us use the till and jump the que. Sainsburys apparent yesterday here in London was the same they just let everybody in .Did manage to get a few bits no milk no toilet rolls etc but I was more worried about being exposed to the crowds, the government st step in soon to do something about it. Rant over and out
stay safe everyone
It is so so frustrating . To be fair M and S did only allow vulnerable and elderly in .I arrived at eight . I went with my list purely for my mum and got turned away . Going to go to Waitrose for her as they are letting those who are shopping for self isolating people in too . It’s getting complicated as I am spending more time at the shops as we have five people in the family self isolating and I have to do separate shops for essentials. Feel I am becoming more of a health hazard to them . This is so complicated . I think they should make their online facilities purely for the vulnerable and self isolating. Then we really could ensure they are fed . I emailed m and s as I have said to all my elderly neighbours just to give me a call but not sure if I can source stuff . Getting a bit suspicious they are enjoying the sales as they could easily go further . Bit token gesture .They could back up their actions with online shopping dedicated to the vulnerable and the rest of us can get our elbows out !!
I really am sorry you encountered that . I asked if they are going to find a way to identify vulnerable or carers . He turned round and said “ nine o’clock “ in a very smug tone . So rude . Did not even say they would take it up with management or answer my questions. Profits the whole way . Only good thing the group that got in were in that category. But should they be out !! It’s a minefield to navigate . Think this needs addressed urgently as you say if they are in before you and after it’s been cleaned and the food gone then it’s pointless.
Anyway my rant over too . Hope you got some stuff to get you over the weekend .
Someone said the supermarkets could have stepped in much earlier but waited till their sales were going great . Christmas come very early for them .
take care ,
Must of been traumatic for you both and definitely not what you were expecting I'm sure. Why oh why do the supermarkets say these things then go back on there own words. I can only see this getting worse unless as you say the government step in and take some form of control to allow the high risk and vulnerable to get essentials without having to fight over everything.
Updated guidelines for visiting NHS hospitals
Hi Everyone ,
Just dropped my MP an email asking for vulnerable groups to be made a priority for online food shopping . Explained some of the problems encountered and how vulnerable groups are being over exposed and drawn out from isolation to still be confronted with empty shelves and unnecessary exposure .
We shall see ,
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