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For people having an ileostomy or colostomy or living with a stoma. Support each...
A support group for patients with Lynch syndrome (also known as Hereditary Non-polyposis...
Hi LinnieLu and welcome,
My light weight husband was diagnosed in january and is coming to the end of his first cycle of oxaliplatin and capec. He has managed to avoid the sickness but had a small bout of 'soft stool'. He was given a 3 day course of an anti-sickness tablet plus others 'just in case' for diarrhoea or vomiting. Could be worth having another chat with your oncology dept.
My husband made mistake of overdoing things just after drip which then made him feel pretty rough for a few days - nurses had a few words and he knows to listen to his body and rest more.
In our case the morning capec is the worst so he's been trying to have cereal ( gold top milk plus sugar) and a banana or toast and jam before taking and it seems to help. Seems to be a certain amount of stubborness and willpower needed to get the day going but worth battling through.
Lack of appetite is an issue. At 6' I struggle to get mine to 10 stone. Still not there. I just try not to make mealtimes an issue. I try to serve small portions of high calorie food and make sure there are lots of snacks around. Plenty of sauces made with cream as a base or gravy with some Complan added can make food easier to swallow. If he has a sweet tooth a small millionaires dessert from the finest range of a supermarket has 400 calories. Melt butter and honey, throw in a banana and he gets one of his 5 a day too. Frijj milkshakes seem to have about the highest calorie count and a screw top lid so he can go back to it. Smoothies are easy to take and help with fibre.
Good luck with the treatment, my man believes it's working for him.
Hugs to you xxx
Another welcome. My mum too lost loads of weight and I also worried. We used milk shakes that could be sipped and some of M and S desserts were full of cals.
It does take a little time to manage the chemo side effects. I again would also speak to the treatment team or GP and make sure you have enough anti sickness tablets. My mum stayed on them until the cap had been completed. If they feel the full dose is too much for him they can reduce the dose slightly and you would be amazed the difference regarding symptoms. We had to consider the fact that my mum had a secondary spread but they carefully considered all aspects.
Just to reassure you despite losing three stones she managed well in the end including surgery and the weight has returned slowly.
My husband is currently on the same regime as yours, five cycles in. Really difficult going at first but after 3 changes in anti sickness drugs and a very slight reduction in dose of capecitabine he is loads better. He also has an ileostomy and I think that the oral chemo hits harder when he only has his small intestine in use. He lost weight, felt nauseous all the time and was so tired. now he is back on domperidome anti sickies with the reduction in dose he is managing fine. Scandishake and fortisip plus work well at keeping the weight up.
Hope things improve,
Hi, I am on the same regime with oxy and 5 fu cycle 5 of 6 luckily it has not effected me too badly, electric fingers and for a few days and each cycle I go off food and don't enjoy food although I force myself to eat and feel better.
I generally feel sick when it's a while since I have eaten and go back to my morning sickness with pregnancy and eat dry toast or a biscuit and it takes the sickness away.
One point I wanted to make is when they work out how much chemo you need at the start of your treatment it is based on your weight, with your husband losing so much, has this been reduced to reflect this otherwise he will be getting too much.
I tend to lose about 7lb in the week of chemo and make sure I put this back on in my good week, by eating chocolate and things I would never normally eat to maintain my starting weight.
Hope things get better for you both soon
When H's dose was reduced a little he felt so much better, I hope Mel does too.
Good luck and enjoy Easter x
Hi Linnie Lou,
Just a quick note to reiterate what Sharon said. I have only had three rounds of Oxy, in combination with Capecitabine. I found the Oxy to be particularly unpleasant. My appetite was all over the place - I did not want to eat but had to as Capecitabine had to be taken with food. For some of the time I just wanted strong flavoured spicy crisps. However the end outcome is all that matters - take each day as it comes without looking too far ahead. But keep that end goal in the back of your mind of getting through all this treatment and getting out the other side. Try to plan a nice meal or a weekend break on the 'good weekend' and arrange little treats - days out etc. Chemo appears to have worked very well for me.
Very best wishes
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