Bowel (colon and rectum) cancer

A group for anyone affected by colon, rectal or small bowel cancer to get together, ask questions, share experiences and support each other.

Hiatus Hernia anyone else out there.

Jerry1
Posted by

Hi

When I had all my tests October 2015 they also found I had a moderate Hiatus hernia as well as stage 2b colon cancer. Unfortunately the operation and chemo has now made my hernia worst and it is now large and giving me a lot of grief. It has got blocked once (3 days in hospital) and nearly blocked again a few times since. Also had very severe reaction to chemo (folfox) and had to stop after second cycle. I now have a damaged nervous system which might be permanent which also effects my bowels.

Wondering if anybody out there has a similar problems as my bowels are in a bit of a state. Difficult to know what pains are caused by. Also trips to loo are an adventure as different from day to day.

Jerry

Marnypots
Posted by

Oh my it's so good that someone else is talking about hiaturps hernias mine had been really bad for about 6 weeks .....I was diagnosed with rectal cancer last September I already had a hernia,  had an op to remove tumour and managed 4 courses of chemo and them took myself if it as I couldn't cope

I have had so much anxiety.

My hernua is so painful yesterday I started panicking that maybe the cancer has spread to my lungs,  today I spoke to my specialist nurse and she put my mind at rest.

I never realised how painful a hiatus hernia is but reading your status has made me feel better so thank you I will now cope with the pain and smile a bit more xxxxx

Marnypots
Posted by

Oops sorry about the spelling mistake 

Jerry1
Posted by

I can't spell either. I find it difficult to get anyone to look me as a single patient looking after all my problems as they all interact with each other. Everybody has been great (apart from Gastro consultant) but it all needs to be pulled together by one person especially as I did not have any of these problems before all treatment. My inguinal hernia repair is now causing problems as a result of bad cough due acid reflux getting into my lungs.

Oh dear I seem to be having a Friday moment.

Marnypots
Posted by

Hi jerry you are not alone I am struggling today everything hurts I'm tired my hernia is s pain and I'm really worried I'll never feel well again ....but tomorrow is another day keep strong 

Margaret xxx

Jerry1
Posted by

Hi Mergret

With you on that one. Very difficult I was self employed handy and very fit lots of cycling etc and being 64 does not help. Previous life no longer possible to weak.  no energy etc. Sitting here wondering about new life ahead what ever it maybe. I have to be careful walked 1.5 miles yesterday and slept for an hour. My hernia has been painful this week as well.

Jerry

Marnypots
Posted by

Hi Jerry I am also 64 and like you very heathy and fit and the mother of 9 children and this cancer has been a pain in the backside ( that's putting it mildly)

Like you I worry about my life from now on but this morning I woke with a determination not to be beaten by it.

The last 6 weeks my hernia has been painful although today it feels a little better who knows so it's onwards and upwards for us

M xxx

lorraine51
Posted by

Hi Marnypots,

Just jumping in here because I saw how many children you have, 9, wow, that's amazing, and if you can cope with that many, then you must be a pretty strong lady and of course more determined to beat it.

Best Wishes and hope that hernia stays calmer for you. xx

Bodach
Posted by

Hi all

Over in the Ileostomy, Colostomy and Stoma Support Group we are all prone to hernias and we can obtain support garments on prescription.

The garments -underwear - are not what you would expect them to be and are in fact very fashionable forget Bridget Jones but think Victoria's Secrets and we have our own Secrets range.

The garments are not only made for the lower part of the body but also for the upper part too.

I am not sure if the garments are suitable for Hiatus Hernia as we get Parastominal Hernias but the principal is the same our insides pushing through muscles with resulting pain.

Many years ago when I was much younger I had a umbilical hernia for many years and the pain at times was so bad I was doubled up in agony, so I sympathise with each and every one if you. 

I hope this is of interest, but apart from having our ostomy secrets we also like our 

To keep our bodies supported.

Ian

More information on my pm area.