I am almost 6 months after Chemo FOLFOX and 3 months since CIPN began slowly to affect my feet and my hands.My daily life is impacted by the symptoms which have progressed slowly but steadily.Extreme cold and then burning in my feet persists and slow creeping numbness in my toes and feet to my ankles.I am aware of discomfort and some pain in my feet all day long.My hands feel prickly and only slightly numb but I can feel them getting worse every day.Also I feel very cold over all of my body.I really do not understand why I am suffering like this.I only had neuropathy in my hands for short periods during each of my 6 cycles.I have been told by my Oncologist that 75% of people affected will get better but he offered no treatment.I have posted before on here but still feel very lonely and on my own with this CIPN as it seems to have a very low priority in the general scheme of things and I almost thing like I am 'whinging' over nothing.However not knowing if it is going to get worse and be permanent is causing me so much anxiety I am finding it hard to enjoy life.
Thank you for your reply I will read it and hope it helps.
I too suffer from the same neuropathy 1 1/2 years post folfox chemo. The cold weather is making it worse. I’ve tried Gabapentin to no avail, looking for answers too as some days it’s hard to walk. It gets depressing. I can relate to you.
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