Hi guys,
I'm undergoing palliative chemo for pretoneal disease/ cancer. I has emergency surgery in Dec 21 whee half my bowel was removed along with lymph nodes and scraping of my peritoneal lining. All went well or as best as it could.
I'm now going to Basingstoke which is a centre dealing with peritoneal cancer and surgery. Has anyone had any experience with HIPEC surgery.
I'm quite anxious about the whole thing and am seriously thinking of not having it. I don't think I can put myself through it. I might have a change of heart after speaking to the consultant but was hoping someone on here could put me at ease by telling me of their experience with HIPEC surgery.
Thanks guy stay safe and take care.
I have had news now they cancel my bowel resection. They want a peritonectomy instead. Sounds more like your journey ahead of me. I was shocked to be told I am under palliative care. It had not spread to any other organ so was upbeat. Had not even had surgery yet. But apparently the journey to all organs now is a rapid one it has escaped the bowel into the fat.
Will discuss HIPEC with them.
Hi Cyclone
My mum was your age when she went under the classification of palliative. She will be 82 in the summer . Whilst they can’t guarantee the cure they still aim for it where possible .
Here to support you through this .
Take special care ,
Court
Helpline Number 0808 808 0000
I was diagnosed stage IV and all they could offer was palliative care. Surgery was never an option. I was given chemo to extend life. I had tumours in Bowel, Ovaries, Liver, peritoneum, Ureter, Omentum. After 8 rounds of chemo, my tumours had shrunk which allowed them to do Cytoreductive surgery with HIPEC. I went from palliative care to complete remission in less than 12 months.
I know it’s easy to say remain positive and have hope, but I’m living proof miracles do happen! Please feel free to reach out to me anytime. Good luck
Cardiff you are an inspiration. I needed to hear some people survive it. Dr Google reckons I should be dead already and yet never felt better. Weird to feel top of world yet at the same time be told you are dying
If I am positive at least what life I have left is more enjoyable.
Law of averages tells me I am due for some good news soon
People often don’t see how power chemo can be for some people as it’s often used post surgery . But like Cardiff1968 my mum was inoperable not once but twice and chemo turned that around . It shrank it right down and gave better margins .
Its difficult news for sure but not without a lot of hope .
Take care ,
Court
Helpline Number 0808 808 0000
Hello Cardiff1968, it's so great to read your story and that you had such good news. My mum has had a similar prognosis to you and we'd like her to be considered for CRS/HIPEC too. Please could I drop you a PM as it would be great if I could ask you about it in a bit more detail. Thanks so much! :)
Hello, I’m more than happy to share my journey with you. I had my op at UHW
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