Had stage 3 bowel cancer and have had part of bowel removed with the tumour and over 45 lymph nodes and a good surrounding area. Which were all clear. Tumour was over 4 cm so been offered adjuvant chemotherapy but it for 6 month and been asked for my decision to have it. Not sure whether to have it or not would appreciate any advice thanks
I agree.I had whole large bowel etc removed plus 60 lymph nodes (all clear).decided to throw everything possible at it .then if it did return I had tried my best.so I went for the mop up chemo.In my case Capox.
But at the end of the day,its your decision depending on your personal views and circumstances.you have to be happy with your choices.
Why not click on peoples names and read the various bios to see how they got on .All the best for whatever you decide
Kath
Hi @Toby. I had capecitabine with oxaliplatin which is a bit different but I’m going to tag Phantomguzzler who was in a similar situation a few weeks ago
Cath
Hi again. It’s hard to comment really as the oxaliplatin is the ‘nasty’ one that has a lot of side effects. I had capecitabine on its own alongside radiotherapy before my op but it’s a low dosage that’s used to enhance the effects of the radiotherapy.
I think the thing I noticed most about the capecitabine was that it made my feet feel gritty - like I was walking on sand - but this stopped after the course ended. I had problems with my feet when having it after my op but that may have been the oxaliplatin?
To be honest most of the side effects are manageable with rest, antisickness tablets, creams, loperamide etc. and the nurses monitor how you are feeling. I think sometimes the reputation of chemo is worse than the actual treatment. You could give it a try and stop if you feel that you’re struggling? Has your consultant given you any figures as to how much it would benefit you?
Personally I threw everything I was offered at the cancer then I could have no regrets and wonder ‘if only…….
Its a tough decision and 6 months is a long time but it would be the final belt and braces on your treatment
Take care
Karen x
Hi Toby , snap. I was offered and took, 30 weeks 5FU /FA but that doesn't seem very common now, despite it only being 2019!! Like most I decided to try it. After about half way and the effects were starting to bite, I said 'just one more'. And then there were none! Perhaps try the chemo on the basis you will have tried, and if you end up giving up, at least you threw everything at it. Some is better than none. All the best
Weee I’m in exactly the same boat as you, had surgery July 14th to remove the tumour, 43 lymph nodes were removed and 15 of them were cancerous so I opted for the mop up chemo they offered just in case there were any spread, it will be CAPOX I start once this bloody wound of mine has healed. I am super terrified though of the possible side effects, defo these throat spasms x
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