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Hi all I’ve recently been diagnosed with secondary breast cancer in the bone and have had numerous tests and appointment coming up I’ve got to have a bone biopsy which I’m really worried about and just wondering if anyone can put my mind at ease slightly
Sorry can't help with your question but just wanted to let you know there is also a Secondary Breast Cancer Group (link) who has several members with bone mets and is a little more active than this one... You may also want to join that group and post this question there as well to cover all the bases
Hope this is of some help, take care, G n' J
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First of all- I am very sorry to hear of your diagnosis. Ive not had a bone biopsy but it was mentioned that I might have one. I’m 7 months down the line but I’m going to ask at my oncology appointment on Thursday so if I have any info I’ll let you know.
Hi Jo lovely to hear you seven months into it my biopsy is tomorrow so dreading it. How are you coping? I’m struggling with it all but suppose it’s early days. Are you on any treatment? Xxx Helen
My wife recently had a bone biopsy and I was dreading it imagining something really gruesome. In fact she didn't experience any pain and it all went very smoothly.
Thankyou I had mine today and it wasn’t as bad as horror stories I had read hopefully don’t need anymore and I hope your wife is doing well
Yes I’m struggling too- good days and bad days. A lot has changed for me which I’m trying to adapt to. My bloods were slightly low today so they’ve delayed my treatment for a week to see if they come up- first time that’s happened so a bit annoyed . I’m on Letrozole, Palbociclib, denusamab and zoladex. Still early days for me too. Hope you are ok and glad the bone biopsy is over for you!
Hi it’s so sad and I don’t think people around me understand they think they do but they don’t. Every day is a lie day at minute and one appointment after another. I’m tired and drained and can’t be bothered and hoping that I pick up cause I don’t want to be this way. Not sure what meds I’m going on yet I’ve got that on 15th so see what that day brings I’ve got this massive dose of radiotherapy first on Monday coming. I’m so pleased that biopsy is done too. When will they check your bloods again? And did you say how long it’s been since you were diagnosed?? Hope you feeling bit brighter today speak soon xxxx
Sorry to find you on this site. I am also on same treatment as Jo6.
I was diagnosed April 2019. First time diagnosis. I have been on Palbo and Letresole combo now for about 10 months. I also have monthly bone juice. Was by infusion but due to COVID last two months has been by injection.
Don't give yourself a hard time, its ok not to be ok and you will find a new type of 'normal'. I have not had radiotherapy so cannot advise on that my profile tells you a bit. I have to have bloods checked every month to see if ok to still take oral chemo and I have a scan every three months.
It is scary, lot and lots of appointments at the beginning, they do settle down. I wish you well for Monday and hope that the treatment you are on helps.
On the secondary breast cancer group there is a thread started by Noswad1 which has positive stories, please take a look it is better that the doom and steer clear of google. I have fared so much better by asking questions on here by people who really get it.
My sister was diagnosed with secondary breast cancer with extensive bone mets in January 2017 straight off aged 43. She is on her second line of treatment and dojng incredibly well. She has had a few sessions of radiotherapy. One to her hip and spine. One of her oncologists calls it spot weldong lol.
She is still going strong. You wouldn't think she had breast cancer. She was terrified understandably at first but 3 and a half years later she has learned to live with her new normal and is an inspiration to her family and friends.
Her oncologist has said there are lots of treatment options available and each year new ones become available.
She has CT scans every 3 momths followed up by an appointment to see how things are.
I do hope youre ok. I thought I would share my sisters story to give you hope and to ler you know that not all appointments will be bad news. There will come a time with the right treatment when you hear the magical words you are stable.
Sending you a virtual hug.
Thankyou so much I’ve had lots of kind words and heard lots of lovely positive stories and I’m so pleased that she is doing well. I will learn to live with it and it’s early days for me. Thankyou and I can’t wait for them magical words. Xxxx
Thankyou so much and it’s lovely to hear from you. I will let you all know which treatment she puts me on and hopefully it’s the same as it sounds like it works well for a lot of people. Thanks again and I’ll read the positive thread. Thankyou xxxx
Yeah it is pretty heavy going with all the appointments at the start- they do settle and you do start to get into a routine. I was a bit in shock at the beginning and didn’t really know what to think or do- was a bit lost- still a bit lost lol! I find my emotions quite hard and not too sure what to do with them and although I do have people around me I do feel very alone because no one knows what it’s like everyday and every night for me and I look ok!- I’ve got to the point that I hate people saying, ‘but you look well’ (eye roll)! I haven’t had any radiotherapy as mine are little spots in a lot of places and I ve been told there’s not one spot big enough to constitute radiotherapy but I’m going to ask again what the situation is when I have my appointment. Also haven’t had a bone biopsy yet which Id quite like to have so I know a bit more info. I was diagnosed in September 2019. First time diagnosis. I’ve supported my mum and sister with breast cancer over the years and I was always very careful so I’m annoyed it’s got to this stage when I thought I did everything right but hey ho- this is where I’m at! I have an extra weeks break and I’m taking it easy this week. We are here to support each other.
Hi Jo yes it’s never ending at minute one after another but I’m grateful it’s getting done quickly it sort of doesn’t give me time to think much. Think I’m in shock and think I’ll be like that till I get into some routine then again I’ll prob still be stressing haha. Yes I agree that I feel lonely too cause I don’t think people understand how we feel. Tell you the truth I don’t think I could imagine how it feels if it was the other way round. I burst into tears most of the time and find it really difficult to talk about it without the tears. Mine has a big patch on the bone scan on my shoulder that’s where they aiming radiotherapy at then I have a couple of bits on my spine too which the oncologist said the medication will target. The bone biopsy that was done was apparently what tells them the kind it is but not really sure on that bit. I had breast cancer five years ago and tell you the truth I thought I was through it but yes I’m the same as you and here we go again. I’ve got appointment on Monday then yes I’ve got a break till the following Monday. You take it easy you deserve to it’s not easy doing this every day. We sure are here to support each other and I’ve found that’s it’s good talking to someone who is going through the same as me. Take care xxx
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