Bone, secondary cancer

Secondary bone cancer is cancer that has spread to the bones from a primary cancer somewhere else in the body. This group is for people affected by secondary bone cancer to share experiences and get support.

Secondary breast cancer that’s spread to the bone.

Lollipops84
Posted by

Hi all, 

I’m looking for some positive stories. Yesterday I was given the news that my breast cancer has spread to my spine in 2 places. Chemo has been stopped and I’m not going to start on targeted drugs to slow the growth and spread. I’m being put on letrozole, goserelin and bisphsophonates. Is anyone else on these and had effective results for long amounts of time? I’m looking for any hope, I have 10 and 14 year old and am devastated and scared xx

Dreamthief
Posted by

Hi

Sorry to read you have had this news, must have been a unexpected discussion emotionally :-/

There is a lengthy thread (5 pages) of Positive Stories in the Secondary Breast Group here you could have a read through ?

There are several ladies there who also have spine spread and are on similar meds.

Hope this helps ease your fears, G n' J

Lollipops84
Posted by

Thank you so much there are so many positive stories it’s really helping me xx

Daylightdancer666
Posted by

Im sorry to here about youe diagnosis intoo have same disgnosis but in all my bones as well as spine. Im only been disgnosed since June aged 32(33 now) but if you would like to know anything about tje teeatment just ask

Xxx

Love hugs and cat paws 
Cazzy xxx
Lollipops84
Posted by

Thank you for your reply, are you taking the same tablets as I will be? If so how effective have they been so far? And what have your side effects been like? I’ve been told I’m expected to do well and better than most on these drugs but obviously that’s not a certainty the same as everyone else. I guess I’m lucky in a way that it’s only my spine so far...I hope it stays that way for as long as possible xx

Daylightdancer666
Posted by

Hiya

I had a scsn in November and results showed considerable shrinkage on diagnosis i had deposits in liver they cant be seen anymore. The rest of had considersable shrinkage

Side effects for zoladex when first had injection I had night sweats fortunately no hot flushes 

Lethzole some aches snd pains in the joints and slight thinning back ny hair

Besopbnates the one I'm taking is denasasaub its been mixed bag for ne because ive had loe calcium so unfortunately ive only had injection three times third one yesterdsy so can't comment on that but make sure you have good dental hygiene and they usually tell you to go dentist befire hand for all clear as extraxtions while on them can prove difficult. They probably prescribe you vitamin d and calcium un supplements 

My oncologost ie very pleased with how lethzole and zoladex combination working together plhs tolerating quite well. 

Im just suffering alot of pain wirh ny back and have crudjed verrbtee due tk cancer so going see surgeon sbout it. I also suffer from anxiety and depression been on medication since 2013 but jss got worse upped. Medicstjon twice since diagnosis once sfter diagnosis snd another time unfortunately my mum got disgnosed with cancer or thyroid she going start very tough treatment plan next week so also seeing physcolggist sorry dor giving you my bsck story =(

If there is anything you want to know add me as friend and we can meesage i was very much in denial sbout my condition wr first lot take in but can emphases with worrry etc cause disgnosis its self and treeatment plan its self xxx 

Love hugs and cat paws 
Cazzy xxx
Lollipops84
Posted by

Thank you for replying. I’m due to start my meds next week when I see my oncologist again. He’s given me a week to come away and let it all sink in as it was info overload. I’m hoping and praying I have a positive reaction to the tablets and I can start to try and get back to some kind of normal. I’m so glad to hear you’ve had good results from your treatment and that’s reassured me so thank you very much xx