Im newly diagnosed with breast cancer that has spread to the bones. I was on Letrozole, Palbociclib, Zoladex and Denosumab injections. Just had 3 month scan and it has still spread within the bones. I'm 37 and my life has completely changed. I'm hoping they can try something else! My mum passed away from secondary breast cancer and my sister also went through treatment. It has helped reading some of your posts. The Lego comment made me smile! Being made of Lego would be so much easier!
welcome to the group! It is good to read isn’t it. My hair sometimes looks like Lego hair :-)
Thats a lot to cope with in your family, have you had genetic testing?
I hope that they can swap your meds and stop the march of the cancer. What have the team said?
I’m on similar meds but riboclib rather than palbociclib, first round so I don’t know for a few more weeks whether it is working. I’m feeling like I’m about to get a cold but it never appears, think it’s my bloods dropping .
Thanks for your message. Genetic testing came back yesterday and it has shown no reason for our cancers. Nothing has been identified on the 8 genes they currently test for although it doesn't rule out that there could be other genes that have not been identified yet. I'm meeting with oncologist on Thursday to see what they suggest so fingers crossed I can try something else!
Hopefully you feel better and your bloods are ok!
I just wanted to say hello and welcome. I am on exactly the same treatment plan as you, had my 2nd cycle last Monday, the 6th.
I am truly sorry to hear the cancer has spread further - you’ve obviously had an extremely rough and personal time with Secondary Breast Cancer and I sincerely hope that they can offer you other meds.
There is so much knowledge and positivity in this Group and I am glad one of the posts made you smile .
Love and best wishes to you xxxxxxxxx
Thank you. I hope your treatment plan goes well. Xx
I know there are many drugs out there so fingers crossed we can put a halt on these charmers! I will know more tomorrow.
The group is a great support as it's very difficult for family and friends to fully understand no matter how much they try.
I sincerely wish you well and I really hope tomorrow’s appointment goes well for you.
Safe payments by:
We're here to provide physical, financial and emotional support. So whatever cancer throws your way, we're right there with you.
© Macmillan Cancer Support
© Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man
(604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company
number 2400969. Isle of Man company number 4694F. Registered office: 89 Albert Embankment, London SE1 7UQ. VAT no: