Bone, secondary cancer

Secondary bone cancer is cancer that has spread to the bones from a primary cancer somewhere else in the body. This group is for people affected by secondary bone cancer to share experiences and get support.

Hi- Newly diagnosed

Jo6
Posted by

Hi,

Im newly diagnosed with breast cancer that has spread to the bones. I was on Letrozole, Palbociclib, Zoladex and Denosumab injections. Just had 3 month scan and it has still spread within the bones. I'm 37 and my life has completely changed. I'm hoping they can try something else! My mum passed away from secondary breast cancer and my sister also went through treatment. It has helped reading some of your posts. The Lego comment made me smile! Being made of Lego would be so much easier!

Jo x
Nickyd1
Posted by

Hi Jo 

welcome to the group! It is good to read isn’t it. My hair sometimes looks like Lego hair :-) 

Thats a lot to cope with in your family, have you had genetic testing? 

I hope that they can swap your meds and stop the march of the cancer. What have the team said? 

I’m on similar meds but riboclib rather than palbociclib, first round so I don’t know for a few more weeks whether it is working. I’m feeling like I’m about to get a cold but it never appears, think it’s my bloods dropping .

Nicky xxx

Jo6
Posted by

Hi Nicky,

Thanks for your message. Genetic testing came back yesterday and it has shown no reason for our cancers. Nothing has been identified on the 8 genes they currently test for although it doesn't rule out that there could be other genes that have not been identified yet. I'm meeting with oncologist on Thursday to see what they suggest so fingers crossed I can try something else!

Hopefully you feel better and your bloods are ok!

Jo x

Jo x
Ruby2016
Posted by

Hi Jo,

I just wanted to say hello and welcome. I am on exactly the same treatment plan as you, had my 2nd cycle last Monday, the 6th.

I am truly sorry to hear the cancer has spread further - you’ve obviously had an extremely rough and personal time with Secondary Breast Cancer and I sincerely hope that they can offer you other meds.

There is so much knowledge and positivity in this Group and I am glad one of the posts made you smile .

Love and best wishes to you xxxxxxxxx

Feel the fear and do it anyway!
Jo6
Posted by

Hi

Thank you. I hope your treatment plan goes well. Xx

I know there are many drugs out there so fingers crossed we can put a halt on these charmers! I will know more tomorrow.

The group is a great support as it's very difficult for family and friends to fully understand no matter how much they try.

Jo x
Ruby2016
Posted by

Hi Jo,

I sincerely wish you well and I really hope tomorrow’s appointment goes well for you. 

xxxxx

Feel the fear and do it anyway!
Jo6
Posted by

Hi,

Just had my 3 month scan results and the cancer has halted on my meds which is great news so back on Palcociclib etc . Gp had told me it had spread further when in actual fact it hadn't- wee mix up with what scans they were comparing! Just sent me onto panic mode for two days until I met the oncologist! So I'll take the good news and hold on to it and await my next 3 month scan.

Jo x
DiAne550
Posted by

I am so pleased for you Jo. Sorry you had two days of panic but what brilliant news.

Keep Thinking Positively. 

DiAne xxx

Ruby2016
Posted by

Hi Jo,

Really pleased to hear this! I’m delighted for you and you hold onto that good news .

xxxxxx

Feel the fear and do it anyway!
Jo6
Posted by

Thank you to you both. Back to being sleepy tired but was pleased to see the box of drugs again! 

Jo x