We understand that people with cancer are worried about coronavirus. Here is the latest guidance. We will update it regularly.

Bone, secondary cancer

Secondary bone cancer is cancer that has spread to the bones from a primary cancer somewhere else in the body. This group is for people affected by secondary bone cancer to share experiences and get support.

New treatment for me. Faslodex (fulvestrant) and ribociclib (kisquali) has anyone had this combination

greengirl74
Posted by

Im getting a transfusion in Saturday but only started kisqali on Wednesday as my bloods were low as i said.  Ive been sick once. Xx

Karen

Evette
Posted by

Hi so glad to find people going through the same thing on here. It just helps to talk to people with the same treatment. I'm going to be positive going through this I don't know if you feel the same

greengirl74
Posted by

It definitely does. There is nothing else for it.  Be positive. 

Karen

Evette
Posted by

Nice to hear from you and with the same attitude keep in touch thank you for replying xx

Lollipops84
Posted by

Hi I’m on this combo did you want to know more about it? X

greengirl74
Posted by

Yes. I started on 3 tablets it wrecked my wbc they stopped tablets after two weeks. Second month, last month i got to week two on one tablet. They have now stopped them while covid19 is ongoing. Still getting the injections i was there today x

Karen

Lollipops84
Posted by

I’m on my second cycle of Ribo I started it last Tuesday, after my first cycle I had to have a few extra days off as my wbc was also rubbish but after a few extra days and eating lots of veggies mine shot yo enough to start my cycle. I still had my Fulvestrant and zoladex between the tablets. I’m still on 3 tablets a day for 21 days but I won’t be shocked if that changes, did you ask for yours to stop or did your onc suggest it? X